Research priorities for pregnancy hypertension: a UK priority setting partnership with the James Lind Alliance
Research priorities for pregnancy hypertension: a UK priority setting partnership with the James Lind Alliance
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DOI：
10.1136/bmjopen-2019-036347
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发表时间：
2020-07-01
期刊：
影响因子：
2.9
通讯作者：
Chappell, Lucy
中科院分区：
文献类型：
--
作者：
Ho, Alison;Webster, Louise;Chappell, Lucy
目标 确定具有生活经验的个人和医疗保健专业人员针对妊娠期高血压疾病的研究重点。使用詹姆斯林德联盟概述的原则设计前瞻性调查和共识会议。设置英国。方法 成立指导小组，并通过在线调查和文献检索收集“不确定性”。一项临时在线调查对长列出的问题进行了排名，并在最终优先级研讨会上达成了共识。参与者 女性、伴侣、有妊娠高血压经历的亲友、研究人员和医疗保健专业人员。结果 278 名参与者（180 名有生活经验的女性、9 名伴侣/亲戚/朋友、71 名医疗保健专业人员和 18 名研究人员）回答了最初的在线调查。结合文献检索，确定了 764 个问题，并被细化为 50 个摘要问题。所有摘要问题均在一项临时优先顺序调查中提出，该调查由 155 名参与者（87 名有生活经验的女性、4 名伴侣/亲戚/朋友、49 名医疗保健专业人员和 15 名研究人员）回答。最终优先级研讨会考虑了排名最高的 25 个问题。前10个不确定性经协商一致确定，并按优先顺序排列如下：妊娠高血压的长期后果（对妇女和婴儿）、妊娠高血压的短期并发症（对妇女和婴儿）、先兆子痫的筛查测试、预防长期问题（对妇女和婴儿）、妊娠高血压的原因、预防复发性妊娠高血压、医疗保健的教育需求 专业人士、先兆子痫的诊断、妊娠高血压的管理、为妇女和家庭提供支持。结论 已经确定了具有妊娠高血压生活经验的人和医疗保健专业人员共同的研究重点。研究人员应该利用这些来指导该领域未来研究的选择。
Objectives To identify research priorities for hypertensive disorders of pregnancy from individuals with lived experience and healthcare professionals. Design Prospective surveys and consensus meetings using principles outlined by the James Lind Alliance. Setting UK. Methods A steering group was established and 'uncertainties' were gathered using an online survey and literature search. An interim online survey ranked long-listed questions and the top 10 research questions were reached by consensus at a final prioritisation workshop. Participants Women, partners, relatives and friends of those with lived experience of pregnancy hypertension, researchers and healthcare professionals. Results The initial online survey was answered by 278 participants (180 women with lived experience, 9 partners/relatives/friends, 71 healthcare professionals and 18 researchers). Together with a literature search, this identified 764 questions which were refined into 50 summary questions. All summary questions were presented in an interim prioritisation survey that was answered by 155 participants (87 women with lived experience, 4 partners/relatives/friends, 49 healthcare professionals and 15 researchers). The top 25 highest ranked questions were considered by the final prioritisation workshop. The top 10 uncertainties were identified by consensus and ranked as follows in order of priority: long-term consequences of pregnancy hypertension (for the woman and baby), short-term complications of pregnancy hypertension (for the woman and baby), screening tests for pre-eclampsia, prevention of long-term problems (for the woman and baby), causes of pregnancy hypertension, prevention of recurrent pregnancy hypertension, educational needs of healthcare professionals, diagnosis of pre-eclampsia, management of pregnancy hypertension, provision of support for women and families. Conclusions Research priorities shared by those with lived experience of pregnancy hypertension and healthcare professionals have been identified. Researchers should use these to inform the choice of future studies in this area.