An ethnographic approach to understanding the illness experiences of patients with congestive heart failure and their family members
An ethnographic approach to understanding the illness experiences of patients with congestive heart failure and their family members
复制标题
DOI：
10.1067/mhl.2001.119832
复制
发表时间：
2001-11-01
期刊：
影响因子：
2.8
通讯作者：
Mahoney, JS
中科院分区：
文献类型：
--
作者：
Mahoney, JS
目的：目的是了解充血性心力衰竭患者及其家庭成员的疾病经历，设计和设置：研究设计是一个集中的人种志，发生在我的门诊心脏病诊所，2门诊心力衰竭诊所，和线人的家位于得克萨斯州东南部的一个大都市。样品：样本包括28个线人（患者，n = 16;家庭成员，n = 12）。方法：数据收集观察，参与者的意见，人口统计表，图表审查，和采访。访谈是开放式的，半结构化的，深入的，录音。通过域分析和构建数据到主题和subthemes.FINDINGS：充血性心力衰竭患者和他们的家庭成员的经验过程中的中断，不连贯，和解进行了主题分析过程。在被调查者的描述中，疾病经历是一种突出的经历，表现为努力参与伙伴关系，在疾病经历中寻找目的和意义，以及投降。
OBJECTIVE: The purpose was to understand the illness experiences of patients with congestive heart failure and their family members.DESIGN AND SETTING: The study design was a focused ethnography that took place in I outpatient cardiology clinic, 2 outpatient heart failure clinics, and informants' homes located in a large metropolitan city in southeast Texas. SAMPLE: The sample consisted of 28 informants (patients, n = 16; family members, n = 12).METHOD: Data were collected from observations, participant observations, demographic forms, chart reviews, and interviews. Interviews were open-ended, semistructured, in-depth, and audiotaped. A thematic analysis process was conducted through domain analysis and constructing data into themes and subthemes.FINDINGS: Patients with congestive heart failure and their family members experience a process of disruption, incoherence, and reconciling. Reconciling emerged as the salient experience described by mean-informants and was manifested as struggling participating in partnerships, finding purpose and meaning in the illness experiences, and surrendering.