Factors associated with parental perception of child vulnerability 12 months after abnormal newborn screening results.

Factors associated with parental perception of child vulnerability 12 months after abnormal newborn screening results.
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DOI:
10.1002/nur.20452
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发表时间:
2011-10
影响因子:
2
通讯作者:
Brown, Roger L.
Brown, Roger L.
中科院分区:
医学4区
文献类型:
--
作者:
Tluczek, Audrey;McKechnie, Anne Chevalier;Brown, Roger L.

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我们确定了与136名新生儿筛查(NBS)12个月后父母对儿童脆弱性(PPCV)认知增强相关的因素:健康、正常结果(H,n=37)、囊性纤维化携带者(CF-C,n=40)、先天性甲状腺功能减退(CH,n=36)和囊性纤维化(CF,n=23)。控制婴儿和父母的特征,混合Logit结构方程模型显示,PPCV的直接路径包括父母女性性别、诊断为CF和有记录的高患病频率。PPCV与母亲的教养压力呈正相关。与H组婴儿相比,CF型和CF型携带者的婴儿患病频率显著增加。CH组与H组无明显差异,也没有通向PPCV的路径。在CF携带者的婴儿中,出人意料的高记录疾病频率值得进一步调查。
We identified factors associated with elevated parental perceptions of child vulnerability (PPCV) 12 months after newborn screening (NBS) of 136 children: healthy, normal results (H, n=37), cystic fibrosis carriers (CF-C, n=40), congenital hypothyroidism (CH, n=36), and cystic fibrosis (CF, n=23). Controlling for infant and parent characteristics, mixed logit structural equation modeling showed direct paths to PPCV included parent female sex, CF diagnosis, and high documented illness frequency. PPCV was positively associated with maternal parenting stress. Infants with CF and CF carriers had significantly more documented illness frequency than H group infants. The CH group did not differ significantly from the H group and had no paths to PPCV. Unexpectedly high documented illnesses frequency among infants who are CF carriers warrants further investigation.
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