Talking about death with children who have severe malignant disease
Talking about death with children who have severe malignant disease
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DOI：
10.1056/nejmoa040366
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发表时间：
2004-09-16
影响因子：
158.5
通讯作者：
Steineck, G
中科院分区：
文献类型：
--
作者：
Kreicbergs, U;Valdimarsdóttir, U;Steineck, G
背景资料：一个孩子谁是绝症与恶性疾病的父母所面临的问题之一是，他们是否应该谈论死亡与他们的child.Methods：在2001年，我们试图在瑞典谁失去了一个孩子的癌症在1992年和1997年之间的所有父母联系。在561名合格的父母中，449人回答了一份问卷，429人陈述了他们是否与孩子谈论过死亡。结果：147名与孩子谈论过死亡的父母中没有人后悔。相比之下，258名没有与孩子谈论过死亡的父母中有69人（27%）后悔没有这样做。感觉到孩子意识到自己即将死亡的父母更有可能后悔没有谈论它（47%，相比之下，13%的父母没有感觉到孩子的这种意识;相对风险为3.7; 95%置信区间为2.3 ~ 6.0）。同样的变量与谈论死亡有关（50%对13%;相对风险，3.8; 95%置信区间，2.6 - 5.6），宗教信仰也是如此（42%对25%;相对风险，1.7; 95%置信区间，1.2 - 2.3）。孩子的年龄与谈论死亡和父母后悔没有谈论它。结论：父母谁的感觉，他们的孩子是知道他或她的即将死亡更经常后来后悔没有与他们的孩子比父母谁没有感觉到这种意识在他们的孩子;总体而言，没有父母在这个队列后来后悔与他或她的孩子谈论死亡。
Background: One of the questions faced by the parents of a child who is terminally ill with a malignant disease is whether or not they should talk about death with their child.Methods: In 2001, we attempted to contact all parents in Sweden who had lost a child to cancer between 1992 and 1997. Among 561 eligible parents, 449 answered a questionnaire, and 429 stated whether or not they had talked about death with their child.Results: None of the 147 parents who talked with their child about death regretted it. In contrast, 69 of 258 parents (27 percent) who did not talk with their child about death regretted not having done so. Parents who sensed that their child was aware of his or her imminent death were more likely to regret not having talked about it (47 percent, as compared with 13 percent of parents who did not sense this awareness in their child; relative risk, 3.7; 95 percent confidence interval, 2.3 to 6.0). The same variable was related to having talked about death (50 percent vs. 13 percent; relative risk, 3.8; 95 percent confidence interval, 2.6 to 5.6), as was being religious (42 percent vs. 25 percent; relative risk, 1.7; 95 percent confidence interval, 1.2 to 2.3). The child's age was related to both having talked about death and the parents' regretting not having talked about it.Conclusions: Parents who sense that their child is aware of his or her imminent death more often later regret not having talked with their child than do parents who do not sense this awareness in their child; overall, no parent in this cohort later regretted having talked with his or her child about death.