Transformation Beyond COVID-19: Accessibility in Lived Experience Involvement in Research Post Pandemic. Experience, Reflections and Future Direction From the Closing the Gap Network and OWLS Study.

Transformation Beyond COVID-19: Accessibility in Lived Experience Involvement in Research Post Pandemic. Experience, Reflections and Future Direction From the Closing the Gap Network and OWLS Study.
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DOI:
10.3389/fpsyt.2022.872341
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发表时间:
2022
影响因子:
4.7
通讯作者:
Peckham, Emily J.
Peckham, Emily J.
中科院分区:
医学3区
文献类型:
--
作者:
Walker, Lauren;Crosland, Suzanne;Johnston, Gordon;Peckham, Emily J.

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2019冠状病毒病大流行期间发表的研究文献强调,在疫情大流行期间,有亲身经历的人失去了参与机会,亲身经历顾问在任何时候都发挥着至关重要的作用,包括强调COVID-19大流行等危机影响的不可见方面。在大流行期间,约克大学弥合差距网络(CtG)的研究人员努力扩大和多样化患者和公众参与(PPI),同时开展一项研究,探讨大流行和相关限制对最严重精神疾病患者的影响。CtG在大流行前有患者和公众参与的良好记录,研究人员希望确保在大流行期间继续保持这种记录。本文从多个角度描述了大流行期间的生活经验参与经验,并就未来参与模式、可及性和未来研究建议提出了建议。
Research literature published during the COVID-19 pandemic highlights the loss of involvement opportunities for people with lived experience during the pandemic as well as the vital role lived experience advisors play at all times, including highlighting unseen aspects of the impacts of crises such as the COVID-19 pandemic. During the pandemic, researchers from the Closing the Gap Network (CtG) at the University of York worked to expand and diversify patient and public involvement (PPI) whist working on a study exploring the impact of the pandemic and associated restrictions on those with the most severe forms of mental ill health. CtG had a strong record of patient and public involvement pre-pandemic and researchers wanted to ensure that this continued during the pandemic. This paper describes the experience of lived experience involvement during the pandemic from multiple perspectives and makes recommendations for future involvement models, accessibility and recommendations for future research.
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