Our data, our society, our health: A vision for inclusive and transparent health data science in the United Kingdom and beyond
Our data, our society, our health: A vision for inclusive and transparent health data science in the United Kingdom and beyond
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DOI：
10.1002/lrh2.10191
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发表时间：
2019-07-01
影响因子：
3.1
通讯作者：
Sperrin, Matthew
中科院分区：
文献类型：
--
作者：
Ford, Elizabeth;Boyd, Andy;Sperrin, Matthew
在过去的六年里，英国及其他国家对健康数据科学进行了持续的投资，这应该会产生一个包容所有利益相关者的数据科学社区，共同努力，通过改善公共健康和福祉来利用数据造福社会。然而，通过数据的创新使用所带来的机会仍未完全实现，导致研究效率低下和可避免的健康危害。在本文中，我们确定了在健康数据科学中实现更高生产力的最重要障碍。然后，我们借鉴以前的研究，领域专业知识和理论，概述如何克服这些障碍，应用我们的包容性和透明度的核心价值观。我们相信，通过利益相关者在研究规划、设计和执行的每一个阶段的有意义的参与，以及基于团队的数据科学，以及利用新颖和安全的数据技术，可以实现一个步骤性的变化。将这些价值观应用于健康数据科学将保障健康数据研究的社会许可，并确保透明和安全的数据使用，以造福公众。
The last 6 years have seen sustained investment in health data science in the United Kingdom and beyond, which should result in a data science community that is inclusive of all stakeholders, working together to use data to benefit society through the improvement of public health and well-being. However, opportunities made possible through the innovative use of data are still not being fully realised, resulting in research inefficiencies and avoidable health harms. In this paper, we identify the most important barriers to achieving higher productivity in health data science. We then draw on previous research, domain expertise, and theory to outline how to go about overcoming these barriers, applying our core values of inclusivity and transparency. We believe a step change can be achieved through meaningful stakeholder involvement at every stage of research planning, design, and execution and team-based data science, as well as harnessing novel and secure data technologies. Applying these values to health data science will safeguard a social licence for health data research and ensure transparent and secure data usage for public benefit.