Patterns of disclosure of HIV status to infected children in a Sub-Saharan African setting.
Patterns of disclosure of HIV status to infected children in a Sub-Saharan African setting.
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DOI：
10.1097/dbp.0b013e31820f7a47
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发表时间：
2011-05
期刊：
影响因子：
--
通讯作者：
Behets F
中科院分区：
文献类型：
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作者：
Vaz LM;Maman S;Eng E;Barbarin OA;Tshikandu T;Behets F
成年照顾者为艾滋病毒感染儿童提供不同数量和类型的健康状况信息，这些信息可能会影响他们的应对和保健行为。我们的目的是描述与儿童分享信息的模式，以及刚果民主共和国照顾者之间关于信息披露的想法。在艾滋病毒儿科护理和治疗项目中，对259名5-17岁儿童的主要照顾者进行了筛查; 8名成年照顾者（3%）已将儿童的艾滋病毒状况告知其子女。我们对201名照顾者进行了结构化访谈，他们的孩子还没有被告知他们的艾滋病毒状况。近50%的照顾者没有向他们的孩子提供有关他们健康的信息; 15%的人提供了部分信息，但没有提到艾滋病毒，33%的人提供了转移对艾滋病毒的注意力的信息，无论是故意的还是其他的。几乎所有的照顾者都说，应该有一天告诉孩子他们的地位，四分之三的人说他们曾经想过什么可能会导致他们告诉。然而，近三分之一的照顾者认为告知儿童其艾滋病毒状况没有任何好处。大多数照顾者认为，他们自己是最好的最终透露给孩子，但有些人希望从卫生保健提供者的支持。感染艾滋病毒的儿童获得的有关其健康的信息有限。卫生保健提供者可以作为支持照顾者的重要来源，因为他们决定何时以及如何与他们的孩子坦率地谈论他们的健康。
Adult caregivers provide children living with HIV with varying amounts and types of information about their health status that may affect their coping and health care behaviors. We aimed to describe patterns of information-sharing with children and thoughts around disclosure among caregivers in the Democratic Republic of the Congo. 259 primary caregivers of children 5–17 years old in an HIV pediatric care and treatment program were screened; 8 adult caregivers (3%) had informed their child of the child’s HIV status. We conducted structured interviews with 201 caregivers whose children had not yet been told their HIV status. Nearly 50% of caregivers provided no information to their child about their health; 15% had given partial information without mentioning HIV, and 33% provided information that deflected attention from HIV, whether deliberately so or otherwise. Almost all caregivers said that the child should be told their status some day, and three-fourths reported having ever thought about what might lead them to tell. However, nearly one-third of caregivers saw no benefits to informing the child of her/his HIV status. A majority of caregivers felt that they themselves were the best to eventually disclose to the child, but some wanted support from health care providers. HIV-infected children are given limited information about their health. Health care providers may serve as important sources of support to caregivers as they decide when and how to talk candidly with their children about their health.