Self-administered Expanded Disability Status Scale with functional system scores correlates well with a physician-administered test
Self-administered Expanded Disability Status Scale with functional system scores correlates well with a physician-administered test
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DOI：
10.1191/135245801678438447
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发表时间：
2001-06-01
期刊：
影响因子：
--
通讯作者：
Kraft, GH
中科院分区：
文献类型：
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作者：
Bowen, J;Gibbons, L;Kraft, GH
在大型流行病学研究中，患者管理的措施是经济有效地评估残疾所需的。地点：伪造多发性硬化症中心的门诊诊所。方法：制定了一份自填式 EDSS 问卷（EDSS-S）。临床明确的多发性硬化症患者连续完成了 EDSS-S (n=95)。在几次就诊期间，医生完成了 EDSS (EDSS-P)。低于 4.0 的分数是使用功能系统 (FS) 分数确定的。 4.0 以上的分数通过两种方法计算：单独使用步态以及结合步态和功能系统分数。结果：EDSS-P 评分范围为 0-9.5（平均值 5.1，中位数 5.0，78% 女性。年龄 17-78，平均年龄 45）。平均 EDSS-P、EDSS-S 和组内一致性相关系数为：仅使用步行的 EDSS（4.6、5.1、0.89）、使用步行和 FS 评分的 EDSS（4.6、5.3、0.87）、肠/膀胱 FS 评分（1.6、1.7 0.79）、锥体 FS 评分（2.1、2.4、 0.67），感觉FS评分（1.6，2.1，0.60），小脑FS评分（1.1，1.6，0.55），脑干FS评分（0.5，1.2，0.45），视觉FS评分（1.9，1.3，0.38），大脑FS评分（0.6，2.3，0.27）。结论：患者和医生的 EDSS 评分与肠/膀胱 FS 评分之间存在非常好的相关性。其他四个 FS 分数具有中等相关性。一般来说，患者对自己的评分比医生更严重。
Patient-administered measures ore needed to assess disability cost-effectively in large epidemiological studies. Setting: An outpatient clinic in a forge multiple sclerosis center. Methods: A self-administered EDSS questionnaire was developed (EDSS-S). Consecutive patients with clinically definite multiple sclerosis completed the EDSS-S (n=95). During the some visit, a physician completed on EDSS (EDSS-P). Scores below 4.0 were determined using functional system (FS) scores. Scores above 4.0 were calculated by two methods, using gait alone and using gait and functional system scores combined. Results: EDSS-P scores ranged from 0-9.5 (mean 5.1, median 5.0, 78% female. age 17-78, mean age 45). Mean EDSS-P, EDSS-S and intraclass correlation coefficients of agreement were: EDSS using ambulation alone (4.6, 5.1, 0.89), EDSS using ambulation and FS scores (4.6, 5.3, 0.87), bowel/bladder FS scores (1.6, 1.7 0.79), pyramidal FS scores (2.1, 2.4, 0.67), sensory FS scores (1.6, 2.1, 0.60), cerebellar FS scores (1.1, 1.6, 0.55), brainstem FS scores (0.5, 1.2, 0.45), vision FS scores (1.9, 1.3, 0.38), cerebral FS scores (0.6, 2.3, 0.27). Conclusions: Very good correlation was seen between patient and physician scores for EDSS and the bowel/bladder FS score. Four other FS scores correlated moderately. In general, patients scored themselves more disabled than physicians.