A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting
A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting
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DOI：
10.3791/56220
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发表时间：
2018-01-01
影响因子：
1.2
通讯作者：
Rand, Larry
中科院分区：
文献类型：
--
作者：
Franck, Linda S.;McLemore, Monica R.;Rand, Larry
现在人们认识到，患者和公众的参与对于研究的良好开展至关重要。患者和公众参与研究优先顺序的设定和资金决策才刚刚开始被认为是重要的，而且这样做的方法还处于萌芽阶段。该议定书描述了按受影响社区划分研究优先次序的议定书及其在早产的社会人口风险较高的妇女中的使用结果。其目的是让这些妇女直接参与确定和优先处理她们关于怀孕、分娩和新生儿护理以及治疗的未回答问题，以便她们的观点可以被纳入资助者和研究人员的研究优先事项。RPAC方案可用于有意义地使特定健康问题高危代表不足的群体或那些面临不成比例的疾病负担的群体参与研究战略和资金优先事项的制定。
Involvement of patients and the public is now recognized to be essential for the good conduct of research. Patient and public involvement in research priority setting and funding decisions is only beginning to be recognized as important, and methods for doing so are nascent. This protocol describes the Research Prioritization by Affected Communities (RPAC) protocol and findings from its use with women at high socio-demographic risk for preterm birth. The goal was to directly involve these women in identifying and prioritizing their unanswered questions about pregnancy, birth and neonatal care, and treatment so that their views could be included in research priority setting by funders and researchers. The RPAC protocol may be used to meaningfully involve under-represented groups at high-risk for specific health problems, or those who face disproportionate burden of disease, in research strategy and funding priority setting.