Caregiver profiles in dementia related to quality of life, depression and perseverance time in the European Actifcare study: the importance of social health

Caregiver profiles in dementia related to quality of life, depression and perseverance time in the European Actifcare study: the importance of social health
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DOI:
10.1080/13607863.2016.1255716
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发表时间:
2017-01-01
影响因子:
3.4
通讯作者:
Verhey, Frans R.
Verhey, Frans R.
中科院分区:
医学2区
文献类型:
--
作者:
Janssen, Eveline P. C. J.;de Vugt, Marjolein;Verhey, Frans R.

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目的:利用国际前瞻性队列研究Actifcare的基线数据,识别轻度至中度痴呆症患者的护理人员概况,并调查已识别的护理人员概况之间的差异。方法:根据453名痴呆症患者及其453名非正式护理人员的疾病相关特征,采用潜在类别分析来发现不同的护理人员概况。这些配置文件进行了比较方面的生活质量(CarerQoL评分),抑郁症状(HADS-D评分)和persistence time.Results:一个5类模型被确定,最好的贝叶斯信息准则值,显着似然比检验(p < 0.001),高熵得分(0.88)和实质性的可解释性。这些类别可以根据两个轴来区分:(i)照顾者的年龄,与痴呆症患者的关系,痴呆症的严重程度,以及(ii)压力倾向和适应压力的困难。类表现出显着差异与所有的因变量,并标记为老年低应变',老年中间应变',老年高应变',年轻的低应变'和年轻的高应变'。结论:不同类型的照顾者之间存在差异,解释变异的生活质量,抑郁症状和毅力的时间。我们的研究结果可能会为痴呆症患者的照顾者提供量身定制的干预措施,这可能会改善社会健康并降低医疗保健成本。
Objectives: To identify caregiver profiles of persons with mild to moderate dementia and to investigate differences between identified caregiver profiles, using baseline data of the international prospective cohort study Actifcare.Methods: A latent class analysis was used to discover different caregiver profiles based on disease related characteristics of 453 persons with dementia and their 453 informal caregivers. These profiles were compared with regard to quality of life (CarerQoL score), depressive symptoms (HADS-D score) and perseverance time.Results: A 5-class model was identified, with the best Bayesian Information Criterion value, significant likelihood ratio test (p < 0.001), high entropy score (0.88) and substantive interpretability. The classes could be differentiated on two axes: (i) caregivers' age, relationship with persons with dementia, severity of dementia, and (ii) tendency towards stress and difficulty adapting to stress. Classes showed significant differences with all dependent variables, and were labelled older low strain', older intermediate strain', older high strain', younger low strain' and younger high strain'.Conclusion: Differences exist between types of caregivers that explain variability in quality of life, depressive symptoms and perseverance time. Our findings may give direction for tailored interventions for caregivers of persons with dementia, which may improve social health and reduce health care costs.