Anxiety and the Quality of Life of Children Living With Parental Cancer
Anxiety and the Quality of Life of Children Living With Parental Cancer
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DOI：
10.1097/ncc.0000000000000467
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发表时间：
2018-01-01
期刊：
影响因子：
2.6
通讯作者：
Dyregrov, Kari
中科院分区：
文献类型：
--
作者：
Hauken, May Aasebo;Senneseth, Mette;Dyregrov, Kari
背景资料：以往对父母患有癌症的儿童的研究主要集中在心理社会挑战上，但很少有研究探讨他们的健康相关生活质量（HRQOL）。这对于促进儿童的幸福感、发现儿童的痛苦领域以及儿童生活的积极方面都是非常重要的。目的：本研究的目的是研究儿童的HRQOL如何受到焦虑的影响，以及年龄和性别是否作为这种关系的调节因素。这项研究采用了一项横断面设计的调查，包括35名8至18岁（平均13.3岁）的父母患有癌症的儿童。结果：儿童组的焦虑水平高于对照组，而生活质量低于对照组。儿童的生理（P = 0.03），情感（P = 0.04）和学校（P = 0.00）功能明显受损，而他们在自尊，家庭，朋友和整体HRQOL方面的得分与对照一致。焦虑和HRQOL.Conclusions之间呈负相关（r =-0.707，P < .01），年龄和性别都不是焦虑和HRQOL.Conclusions之间的调节者：一个一维的关注焦虑可能无法捕捉这些孩子的多维挑战。相比之下，对HRQOL的重点可能会给儿童的挑战的重要知识，以及他们运作良好的领域。对Practice的影响：医疗保健专业人员需要跨学科合作，并有一个多方面的重点照顾癌症患者谁有孩子。他们必须为父母和儿童提供足够的信息和工具来处理他们的家庭健康状况，以促进儿童的HRQOL。
Background: Previous research on children living with parental cancer has mainly focused on the psychosocial challenges, but few studies have explored their health-related quality of life (HRQOL). This is important to promote well-being and discover areas of distress, as well as positive aspects of the children's life.Objective: The aim of this study was to study how children's HRQOL is influenced by anxiety and whether age and gender act as moderators for this relationship.Methods: This study used a survey with a cross-sectional design, including 35 children between 8 and 18 years old (mean, 13.3 years old) living with parental cancer. Questionnaires of HRQOL (Kinder Lebensqualitat) and anxiety (Revised Child Manifest Anxiety Scale) were used.Results: The children reported higher anxiety and lower HRQOL than the controls. The children's physiological (P = .03), emotional (P = .04), and school (P = .00) functions were significantly impaired, whereas they scored in line with the controls on self-esteem, family, friends, and overall HRQOL. A negative correlation (r = -0.707, P < .01) between anxiety and HRQOL was found. Neither age nor gender acted as a moderator between anxiety and HRQOL.Conclusions: A one-dimensional focus on anxiety may not capture these children's multidimensional challenges. In contrast, a focus on HRQOL may give important knowledge of the children's challenges, as well as areas where they function well.Implications for Practice: Healthcare professionals need to work collaboratively across disciplines and have a multidimensional focus in caring for patients with cancer who have children. They must provide both the parents and children with adequate information and tools to handle their family health situation to promote the children's HRQOL.