Empowering children and families with information technology
Empowering children and families with information technology
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DOI：
10.1001/archpedi.155.10.1131
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发表时间：
2001-10-01
影响因子：
--
通讯作者：
Dosa, NP
中科院分区：
文献类型：
--
作者：
D'Allesandro, DM;Dosa, NP
患者赋权是增强患者主动了解和影响其健康状况的能力。信息是患者赋权的关键。没有信息，儿童和家庭就无法进行有意义的讨论，也无法就医疗保健做出深思熟虑的决定。信息共享是患者与医疗保健系统互动的一种模式，可以显着改善儿童和家庭的护理。这篇文章的重点是信息技术，利用以用户为中心的设计原则和交互功能，以促进信息共享，并赋予儿童和家庭。例子包括电子儿科个人医疗记录，定制的健康信息系统，以及具有电子邮件（e-mail）和远程医疗功能的交互式医生办公室。理想情况下，这些系统都将被整合。新技术的成功实施将需要深思熟虑的关注和平衡的解决方案，以解决信息共享与安全以及管理与审查之间的紧张关系。还必须解决与接入和数字鸿沟有关的问题。新技术的接受和可用性取决于医生、信息学研究人员、图书馆员、教育工作者和其他具有人机界面专业知识的专业人员之间的密切合作。赋予儿童和家庭权力将是信息共享技术的驱动力和最终成果。
Patient empowerment is the enhanced ability of patients to actively understand and influence their health status. Information is the key to patient empowerment. Without information, children and families cannot engage in meaningful discussions or make thoughtful decisions regarding medical care. Information sharing is a model for patient interaction with the health care system that may significantly improve the care of children and families. This article focuses on information technologies that utilize user-centered design principles and interactive capabilities to facilitate information sharing and to empower children and families. Examples include electronic pediatric personal medical records, customized health information systems, and interactive physician offices with electronic mail (e-mail) and telemedicine capabilities. Ideally, these systems would all be integrated. Successful implementation of new technologies will require thoughtful attention and balanced solutions to tensions between information sharing vs security, and curatorship vs censorship. Issues related to access and the digital divide must also be addressed. Acceptance and usability of new technologies is predicated on close collaboration among physicians, researchers in informatics, librarians, educators, and other professionals with expertise in the human-computer interface. Child and family empowerment will be both the driving force and ultimate outcome of information-sharing technologies.