Care Partner Inclusion of People Hospitalized With Alzheimer Disease and Related Dementias: Protocol for a Mixed Methods Systems Engineering Approach to Designing a Health Care System Toolkit.
Care Partner Inclusion of People Hospitalized With Alzheimer Disease and Related Dementias: Protocol for a Mixed Methods Systems Engineering Approach to Designing a Health Care System Toolkit.
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DOI：
10.2196/45274
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发表时间：
2023-05-16
影响因子：
1.7
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中科院分区：
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研究和政策表明，有系统地将护理伙伴纳入阿尔茨海默病和相关痴呆症患者的医院护理服务是有价值和必要的。通过有关照料责任的信息和培训向护理伙伴提供支持，对于促进他们的积极参与和最终改善ADRD患者的住院结果非常重要。为了促进护理伙伴的积极参与，需要一个工具包，指导卫生系统确定、评估和培训护理伙伴。以用户为中心的方法可以通过创建实用的工具包来弥补实践中的这一差距，这些工具包可以满足护理伙伴及其住院的家庭成员和患有ADRD的朋友的需求。本文描述了ADRD系统医院包容家庭工具包(A-SHIFT)的开发和完善的研究方案。A-Shift将为卫生保健系统提供指导，指导如何有效地识别、评估和培训ADRD住院患者的护理伙伴。A-Shift研究方案将使用3个目标、收敛的混合方法来迭代开发和改进工具包。在目标1中，我们将使用系统工程方法来描述ADRD患者在医院护理中纳入护理伙伴的模式。在目标2中，我们将与利益攸关方合作，确定医疗保健系统的促进者和障碍，以纳入ADRD住院患者的护理伙伴，并确定优先事项。在目标3中，我们将与利益攸关方合作，共同设计一个可适应的工具包，供卫生系统使用，以促进识别、评估和培训住院的ADRD患者的护理伙伴。我们的收敛混合方法将促进所有三个目标的三角剖分，以增加结果的可信度和可转移性。我们预计这项研究从2022年9月1日到2024年8月31日需要24个月的时间。A-Shift研究方案将产生(1)医院工作流程中纳入护理伙伴的最佳点，(2)将护理伙伴纳入ADRD患者住院的潜在可修改障碍和促进者的优先列表，以及(3)综合的、准备进行可行性测试的工具包，以指导将ADRD患者的护理伙伴纳入医院护理。我们预计，由此产生的A-Shift将为卫生系统提供准备就绪清单、实施计划和资源，以识别、评估和培训护理合作伙伴，指导他们如何在出院后为ADRD患者履行护理职责。A-Shift不仅有可能改善护理伙伴的准备，还有助于减少出院后ADRD患者的健康和服务使用结果。DERR1-10.2196/45274
Research and policy demonstrate the value and need for the systematic inclusion of care partners in hospital care delivery of people living with Alzheimer disease and related dementias (ADRD). Support provided to care partners through information and training regarding caregiving responsibilities is important to facilitating their active inclusion and ultimately improving hospital outcomes of people living with ADRD. To promote care partners’ active inclusion, a toolkit that guides health systems in the identification, assessment, and training of care partners is needed. User-centered approaches can address this gap in practice by creating toolkits that are practical and responsive to the needs of care partners and their hospitalized family members and friends living with ADRD. This paper describes the study protocol for the development and refinement of the ADRD Systematic Hospital Inclusion Family Toolkit (A-SHIFT). A-SHIFT will provide health care systems with guidance on how to effectively identify, assess, and train care partners of hospitalized persons living with ADRD. The A-SHIFT study protocol will use a 3-aimed, convergent mixed method approach to iteratively develop and refine the toolkit. In Aim 1, we will use a systems-engineering approach to characterize patterns of care partner inclusion in hospital care for people living with ADRD. In Aim 2, we will partner with stakeholders to identify and prioritize health care system facilitators and barriers to the inclusion for care partners of hospitalized people living with ADRD. In Aim 3, we will work with stakeholders to co-design an adaptable toolkit to be used by health systems to facilitate the identification, assessment, and training of care partners of hospitalized people living with ADRD. Our convergent mixed method approach will facilitate triangulation across all 3 aims to increase the credibility and transferability of results. We anticipate this study to take 24 months between September 1, 2022, and August 31, 2024. The A-SHIFT study protocol will yield (1) optimal points in the hospital workflow for care partner inclusion, (2) a prioritized list of potentially modifiable barriers and facilitators to including care partners in the hospitalization of people living with ADRD, and (3) a converged-upon, ready for feasibility testing of the toolkit to guide the inclusion of care partners of people living with ADRD in hospital care. We anticipate that the resultant A-SHIFT will provide health systems with a readiness checklist, implementation plan, and resources for identifying, assessing, and training care partners on how to fulfill their caregiving roles for people living with ADRD after hospital discharge. A-SHIFT has the potential to not only improve care partner preparedness but also help reduce health and service use outcomes for people living with ADRD after hospital discharge. DERR1-10.2196/45274