‘I think the carer-partner dichotomy is always interesting’: tensions in health professionals’ engagement with spousal care givers of people with Parkinson's
‘I think the carer-partner dichotomy is always interesting’: tensions in health professionals’ engagement with spousal care givers of people with Parkinson's
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“我认为照顾者与伴侣的二分法总是很有趣”：卫生专业人员与帕金森病患者的配偶照顾者之间的紧张关系
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发表时间：
2016
期刊：
影响因子：
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通讯作者：
R. Bucks
中科院分区：
文献类型：
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作者：
M. Bolland;A. Guilfoyle;R. Bucks
背景：帕金森氏症(PWP)患者的配偶照顾者拥有独特的第一手信息，这些信息对于有效治疗帕金森病(PD)是非常宝贵的。然而，缺乏专门针对卫生专业人员与PWP的配偶照顾者接触的经验的研究。方法：使用解释现象学分析(IPA)来描述和识别帕金森病(PD)卫生专业人员(HPPS)对他们与PWP配偶照顾者的接触经历的意义。对12个惠普方案有目的的样本进行了数字记录、逐字转录和分析新出现的主题。结果：从对HPP的访谈中发现了两个主要主题：(I)关怀哲学(PoC)是参与体验的内在要素；以及(Ii)HPP对合作伙伴对PWP的支持深表赞赏。由于他们的生活现实和他们的PoC之间的互动，HPP在与PWP合作伙伴的接触中经历了严重的紧张和挑战。他们也非常感谢合作伙伴提供的照顾。所获得的见解有可能缓解或解决接触进程中存在的问题紧张局势。
Background: The spousal care givers of people with Parkinson's (PwP) have unique, first-hand information that is invaluable in the effective management of Parkinson's disease (PD). However, there is a dearth of research that specifically focuses on health professionals’ experiences of engagement with the spousal care givers of PwP. Methods: Interpretative phenomenological analysis (IPA) was used to describe and identify the meaning that health professionals working with PD (HPPs) gave to their engagement experiences with spousal care givers of PwP. Semi-structured interviews with a purposive sample of 12 HPPs were digitally recorded, transcribed verbatim and analysed for emerging themes. Results: Two major themes emerged from the interviews with HPPs: (i) the Philosophy of Care (PoC) is an Intrinsic Element in the Engagement Experience; and (ii) HPPs Expressed a Deep Appreciation of Partners’ Support of the PwP. HPPs experienced significant tensions and challenges in their engagements with the partners of PwP, as a result of the interaction between their lived reality and their PoC. They also appreciated greatly the caregiving provided by the partners. The insights gained have the potential to ease or resolve problematic tensions within the engagement process.