Psychosexual distress in women with gynecologic cancer: a feasibility study of an online support group

Psychosexual distress in women with gynecologic cancer: a feasibility study of an online support group
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DOI:
10.1002/pon.3058
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发表时间:
2013-04-01
期刊:
影响因子:
3.6
通讯作者:
Ferguson, Sarah E.
Ferguson, Sarah E.
中科院分区:
医学2区
文献类型:
--
作者:
Classen, Catherine C.;Chivers, Meredith L.;Ferguson, Sarah E.

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目的妇科癌症患者的性心理问题往往没有得到解决,而且妇女处理这一高度敏感话题的资源有限。这项可行性研究考察了专门为妇科癌症治疗后性困扰妇女设计的在线支持小组的参与率和初步结果。方法:开发了一项为期12周的在线干预,以解决妇科癌症对性心理的影响。这一干预包括一个由专业人士主持的异步讨论论坛,以及提供关于妇科癌症对性心理影响的心理教育材料。每周都会介绍一个新的话题,并在网站上发布相关资料。鼓励妇女分享她们与这一主题有关的经验。27名性痛苦、缓解的妇科癌症患者被随机分配到立即治疗组或候补对照组。参与者在基线、4个月和8个月的随访中完成问卷调查,评估性困扰作为主要结果,以及焦虑、抑郁和疾病侵入性。结果两组的参与率不同,第二组的参与率更高。退出访谈表明,大多数参与者对干预感到满意。意向治疗分析表明,对减减性痛苦的影响较小。结论:这项可行性研究表明,妇女认为这种干预是可以接受的。需要进一步的研究来确定疗效。版权所有:John Wiley & Sons, Ltd。
Objectives The psychosexual concerns of gynecologic cancer patients are often unaddressed and there are limited resources available for women to deal with this highly sensitive topic. This feasibility study examines the participation rates and preliminary outcomes for an online support group designed specifically for women who are sexually distressed subsequent to gynecologic cancer treatment Methods A 12-week online intervention was developed to address the psychosexual impact of gynecologic cancer. This intervention included a professionally moderated, asynchronous discussion forum as well as the provision of psycho-educational materials addressing the psychosexual impact of gynecologic cancer. Each week, a new topic was introduced and relevant material was posted on the website. Women were encouraged to share their experiences related to the topic. Twenty-seven, sexually distressed, remitted gynecologic cancer patients were randomly assigned to immediate treatment or a waitlist control condition. Participants completed questionnaires at baseline, 4-month and 8-month follow-ups assessing sexual distress as the primary outcome as well as anxiety, depression, and illness intrusiveness. Results Participation rates differed between the two groups, with greater participation occurring in the second group. Exit interviews indicated that the majority of the participants were satisfied with the intervention. Intent-to-treat analyses suggest a small effect for reduction in sexual distress Conclusions This feasibility study suggests that women find this intervention acceptable. Further research is required to determine efficacy. Copyright (c) 2012 John Wiley & Sons, Ltd.