Adolescents' and Young Adults' Lived Experiences Following Venous Thromboembolism "It will always lie in wait"
Adolescents' and Young Adults' Lived Experiences Following Venous Thromboembolism "It will always lie in wait"
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DOI：
10.1097/nnr.0000000000000183
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发表时间：
2016-11-01
期刊：
影响因子：
2.5
通讯作者：
Sorensen, Erik Elgaard
中科院分区：
文献类型：
--
作者：
Hojen, Anette Arbjerg;Dreyer, Pia S.;Sorensen, Erik Elgaard
背景：青春期和青春期静脉血栓栓塞症(VTE)患者的长期心理健康状况鲜有人关注。目的：本研究的目的是探索青少年和年轻人VTE后生活经历的本质意义，以深入了解他们的长期心理健康状况。方法：对12名丹麦青春期或青春期VTE患者进行半结构式访谈。访谈受到法国哲学家保罗·利科的阐释理论启发，采用现象学的解释学方法进行分析。结果：形成四个主题。参与者描述了一种青年不朽的悄悄丧失的经历，一种与众不同的感觉，与处于警报状态的身体生活在一起，并感受到症状管理的不安全感。讨论：从长远来看，被诊断为VTE的青少年和年轻人的心理健康会受到负面影响。对VTE复发的恐惧占主导地位，是心理痛苦的重要来源。这项研究强调了在为被诊断为静脉血栓栓塞症的青少年和年轻人制定康复计划时，将长期的心理健康纳入总体评估的临床重要性。
Background: Long-term, mental well-being of adolescence and young adults diagnosed with venous thromboembolism (VTE) as experienced by the patients has received little attention.Objective: The purpose of this study was to explore the essential meaning of adolescents' and young adults' lived experiences following VTE to gain an in-depth understanding of their long-term, mental well-being.Methods: Semistructured interviews were conducted with 12 Danish patients who were diagnosed with VTE in adolescence or young adulthood. Interviews were analyzed according to a phenomenological hermeneutical approach inspired by the French philosopher Paul Ricoeur's theory of interpretation.Results: Four themes emerged. Participants described an experience of a creeping loss of youth immortality, a perception of being different, to live with a body in a state of alarm, and feel symptom management insecurity.Discussion: Mental well-being of adolescents and young adults diagnosed with VTE is negatively impacted in the long term. Fear of VTE recurrence predominates and is an important source of psychological distress. This study highlights the clinical importance of including the long-term, mental well-being in the overall assessment when developing rehabilitation programs for adolescents and young adults diagnosed with VTE.