Updates in SJS/TEN: collaboration, innovation, and community.
Updates in SJS/TEN: collaboration, innovation, and community.
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DOI：
10.3389/fmed.2023.1213889
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发表时间：
2023
影响因子：
3.9
通讯作者：
中科院分区：
文献类型：
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作者：
史蒂文斯-约翰逊综合征/中毒性表皮坏死松解症(SJS/TEN)是一种主要由药物引起的疾病，死亡率为15%-20%，涉及皮肤科、过敏学、免疫学、临床药理学、烧伤外科、眼科、泌尿外科和精神病学。SJS/TEN在美国每年的发病率为1-5/百万人，全球发病率甚至更高。SJS/TEN的挑战之一是发展研究基础设施和协调，以回答能够改变临床护理并改善患者结果的问题。SJS/TEN 2021是此类研究的第三次会议，于2021年8月28日至29日以虚拟会议的形式举行。这次会议聚集了428名国际科学家，以及140名SJS/TEN幸存者和家属。会议的目的是集思广益，制定战略，以支持国际科学与科学研究网络的继续发展，为科学和社区架起桥梁。会议的社区工作坊部分集中讨论了八个主要主题：精神健康，眼睛护理，儿童的SJS/TEN，非药物导致的SJS/TEN，长期健康并发症，机制和基础科学的新进展，长期疤痕的管理，肤色皮肤的考虑，以及新冠肺炎疫苗。会议介绍了几个重要的最新情况，并确定了未得到满足的研究和临床需求的领域，这些领域将在本白皮书中重点介绍。
Stevens-Johnson Syndrome/Toxic Epidermal Necrolysis (SJS/TEN) is a predominantly drug-induced disease, with a mortality rate of 15–20%, that engages the expertise of multiple disciplines: dermatology, allergy, immunology, clinical pharmacology, burn surgery, ophthalmology, urogynecology, and psychiatry. SJS/TEN has an incidence of 1–5/million persons per year in the United States, with even higher rates globally. One of the challenges of SJS/TEN has been developing the research infrastructure and coordination to answer questions capable of transforming clinical care and leading to improved patient outcomes. SJS/TEN 2021, the third research meeting of its kind, was held as a virtual meeting on August 28–29, 2021. The meeting brought together 428 international scientists, in addition to a community of 140 SJS/TEN survivors and family members. The goal of the meeting was to brainstorm strategies to support the continued growth of an international SJS/TEN research network, bridging science and the community. The community workshop section of the meeting focused on eight primary themes: mental health, eye care, SJS/TEN in children, non-drug induced SJS/TEN, long-term health complications, new advances in mechanisms and basic science, managing long-term scarring, considerations for skin of color, and COVID-19 vaccines. The meeting featured several important updates and identified areas of unmet research and clinical need that will be highlighted in this white paper.
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影响因子：
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作者：
Kwon CW;Murthy RK;Kudchadkar R;Stoff BK
通讯作者：
Stoff BK
DOI：
10.1016/j.jaip.2022.04.027
发表时间：
2022-07
影响因子：
9.4
作者：
Deshpande, Pooja;Li, Yueran;Thorne, Michael;Palubinsky, Amy M.;Phillips, Elizabeth J.;Gibson, Andrew
通讯作者：
Gibson, Andrew
史蒂文斯 - 约翰逊综合征/有毒表皮坏死的临床方面，台湾严重的眼部并发症。
影响因子：
3.9
作者：
Ma DH;Tsai TY;Pan LY;Chen SY;Hsiao CH;Yeh LK;Tan HY;Lu CW;Chen CB;Chung WH
通讯作者：
Chung WH
影响因子：
3.9
作者：
通讯作者：
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