The influence of the culture of care on informal caregivers' experiences.
The influence of the culture of care on informal caregivers' experiences.
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DOI：
10.1097/ans.0b013e318244555a
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发表时间：
2012-01
期刊：
影响因子：
--
通讯作者：
Shipley PZ
中科院分区：
文献类型：
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作者：
Penrod J;Baney B;Loeb SJ;McGhan G;Shipley PZ
护理环境可能会对照顾患有限制生命的亲人的家庭的护理经历产生深远影响。护理通常是通过疾病专科诊所提供的，这些诊所由疾病轨迹决定。在这项研究中，确定了以下三种不同的护理文化：跨学科、提供者主导和合作网络。这些文化中的每一种都通过5个关键特征表达了独特的价值观和信念：对死亡确定性的认识、正式照顾者的角色、对患者系统的感知、整个轨迹中患者探视的重点以及整个轨迹中的连续护理。
The environment of care can have a profound impact on caregiving experiences of families caring for loved ones with a life-limiting illness. Care is often delivered through disease-specific specialty clinics that are shaped by the illness trajectory. In this study, the following 3 distinct cultures of care were identified: interdisciplinary, provider dominant, and cooperative network. Each of these cultures was found to express unique values and beliefs through 5 key characteristics: acknowledgment of the certainty of death, role of the formal caregiver, perception of the patient system, focus of the patient visit across the trajectory, and continuum of care across the trajectory.