Patient and Provider Preferences for Survivorship Care Plans
Patient and Provider Preferences for Survivorship Care Plans
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DOI：
10.1200/jop.2011.000401
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发表时间：
2012-07-01
影响因子：
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通讯作者：
Smith, Sophia K.
中科院分区：
文献类型：
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作者：
Mayer, Deborah K.;Gerstel, Adrian;Smith, Sophia K.
目的：生存护理计划（SCP）是用于帮助从治疗过渡到监测癌症护理的工具。然而，很少有研究调查幸存者和供应商对SCP的偏好。我们的目的是探索幸存者和初级保健提供者的偏好，内容，格式和交付的SCPs.Methods：焦点小组和供应商访谈在2010年进行。向研究参与者提供了五种不同的模板，以征求他们的反馈。每个SCP都包括同一虚构患者的治疗总结、监测时间表和护理计划。会议被转录，并采取现场notes.Results：四个焦点小组（n = 29幸存者）和五个初级保健提供者参加。没有癌症幸存者收到过书面SCP。我们发现，在治疗完成前或治疗完成后不久，幸存者的肿瘤学家对Journey Forward格式（经过一些修改）和面对面交付（打印或电子）有明显的偏好。初级保健提供者首选的缩写版本。结论：书面SCP赞同所有患者和初级保健提供者作为有用的沟通工具。然而，如果单独使用，SCP将不足以缓解向后续护理的过渡。改善沟通和护理协调被认为是重要的生存护理，超出了本文件可能提供的。
Purpose: Survivorship care plans (SCPs) are tools used to assist in the transition from treatment to surveillance cancer care. However, few studies have investigated survivor and provider preferences regarding SCPs. Our purpose was to explore survivor and primary care provider preferences regarding content, format, and delivery of SCPs.Methods: Focus groups and provider interviews were performed in 2010. Five different templates were presented to study participants for their feedback. Each SCP included a treatment summary, surveillance schedule, and care plan for the same fictitious patient. Sessions were transcribed, and field notes taken.Results: Four focus groups (n = 29 survivors) and five primary care providers participated. No cancer survivors had ever received a written SCP. We found clear preferences for the Journey Forward format (with some modifications) and face-to-face delivery (print or electronic) to the survivor by his or her oncologist just before or soon after completion of treatment. Primary care providers preferred an abbreviated version.Conclusion: Written SCPs were endorsed by all patients and primary care providers as helpful communication tools. However, if used alone, the SCP would be insufficient to ease the transition to follow-up care. Improved communication and care coordination were identified as important for survivorship care that went beyond what this document might provide.