Symptom burden at the end of life: Hospice providers' perceptions

Symptom burden at the end of life: Hospice providers' perceptions
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DOI:
10.1016/s0885-3924(01)00281-0
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发表时间:
2001-06-01
影响因子:
4.7
通讯作者:
Nowels, DE
Nowels, DE
中科院分区:
医学2区
文献类型:
--
作者:
Kutner, JS;Kassner, CT;Nowels, DE

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为了描述临终关怀患者的症状发生率、频率和严重程度,从临终关怀提供者的角度,对参与基于人群的姑息关怀研究网络(PoPCRN)的16家临终关怀机构进行了横断面研究。临终关怀工作人员使用纪念症状评估量表评估症状的存在、频率和严重程度。在348名患者中(中位年龄78岁,55%女性,55%被诊断为癌症),临终关怀人员发现的最常见症状是精力不足(83%)、疼痛(76%)、食欲不振(63%)、嗜睡(61%)、注意力难以集中(60%)和悲伤(51%)。临终关怀提供者将体能不足分为经常(75%“经常”或“几乎经常”)和严重(46%“严重”或“非常严重”)。症状因护理环境和诊断而异。临终关怀工作人员经常缓慢地收集足够的信息来评估潜在的重要症状,如性兴趣或活动问题(63%)、自我形象变化(30%)和担忧(26%)。这项研究确定了临终关怀患者中未缓解症状的严重负担,表明需要更广泛地制定经证实有效的症状管理策略,并对鲜有有效治疗策略的常见症状的治疗进行额外调查。J疼痛症状管理2001:21:473-480(C)美国癌症疼痛缓解委员会,2001。
To describe symptom prevalence, frequency and severity among hospice patients, from the perspective of hospice providers, a cross-sectional study was conducted among 16 hospices participating ist the Population-based Palliative Care Research Network (PoPCRN). Hospice staff estimated symptom presence, frequency, and severity, using the Memorial Symptom Assessment Scale. Among the 348 patients (median age 78 years, 55 % female, 55 % cancer diagnosis), the most common symptoms noted by hospice staff were lack of energy (83 %), pain (76 %), lack of appetite (63 %), drowsiness (61 %), difficulty concentrating (60 %), and sadness (51 %). When present, lack of energy was rated by hospice providers as both frequent (75 % "frequently" or "almost constantly") and severe (46 % "severe" or "very severe"). Symptoms varied by care setting and by diagnosis. Hospice staff often Inched sufficient information to rate potentially important symptoms, such as problems with sexual interest or activity (63 %), change in self image (30 %), and worrying (26 %). This study identifies a significant burden of unrelieved symptoms among hospice patients, suggesting a need for more widespread institution of symptom management strategies with proven effectiveness and additional investigation into treatment of common symptoms for which few effective treatment strategies are known. J Pain Symptom Manage 2001: 21:473-480 (C) U.S. Cancer Pain Relief Committee, 2001.