Specialist nurses' perceptions of inviting patients to participate in clinical research studies: a qualitative descriptive study of barriers and facilitators.
Specialist nurses' perceptions of inviting patients to participate in clinical research studies: a qualitative descriptive study of barriers and facilitators.
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DOI：
10.1186/s12874-016-0204-5
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发表时间：
2016-08-11
影响因子：
4
通讯作者：
Stavropoulou C
中科院分区：
文献类型：
--
作者：
French C;Stavropoulou C
增加参与研究的患者数量是英国国民保健服务（NHS）当前的优先事项。专科护士在邀请病人参与的过程中扮演着重要的角色，然而人们对她们这样做的经历知之甚少。本研究的目的是探讨的障碍和调解人持有的经验，邀请成人NHS患者进行各种各样的研究专科护士的看法。横断面定性描述性研究于2015年3月至7月进行。参与者是12名专科护士，代表7个不同的临床专科和7个不同的NHS信托。我们使用个人半结构化访谈收集数据，并使用框架方法分析笔录，归纳地获得障碍和促进因素的描述性概述。障碍和促进因素是复杂和相互依存的。个体之间的看法各不相同，但障碍和促进因素集中在五个主要主题上：1)评估患者适用性，2)团队合作，3)重视研究，4)邀请过程和5)理解研究。邀请患者参与研究的促成因素往往源于专科护士的态度、技能和经验。积极的研究文化、有效的团队合作以及当地临床团队层面的研究和临床团队之间的牢固关系同样重要。当专科护士认为他们在邀请过程中为患者提供的信息不足时，当专科护士感到他们对研究的理解不满意时，就会出现障碍。我们的研究提供了一些关于专科护士在招募患者进行研究中的作用的新见解。它表明，强大的当地研究文化和团队合作克服了以前研究中报告的一些更广泛的组织和工作量障碍。此外，与常规做法相反，我们的研究结果表明，研究团队可以从个性化的研究培训和邀请程序中受益，以满足专科护士的偏好和要求。研究结果为专业护士、研究团队、政策制定者以及所有对增加患者参与研究感兴趣的人提供了反思实践的基础。本文的在线版本（doi:10.1186/s12874-016-0204-5）包含补充材料，可供授权用户使用。
Increasing the number of patients participating in research studies is a current priority in the National Health Service (NHS) in the United Kingdom. The role of specialist nurses in inviting patients to participate is important, yet little is known about their experiences of doing so. The aim of this study was to explore the perceptions of barriers and facilitators held by specialist nurses with experience of inviting adult NHS patients to a wide variety of research studies. A cross-sectional qualitative descriptive study was conducted between March and July 2015. Participants were 12 specialist nurses representing 7 different clinical specialties and 7 different NHS Trusts. We collected data using individual semi-structured interviews, and analysed transcripts using the Framework method to inductively gain a descriptive overview of barriers and facilitators. Barriers and facilitators were complex and interdependent. Perceptions varied among individuals, however barriers and facilitators centred on five main themes: i) assessing patient suitability, ii) teamwork, iii) valuing research, iv) the invitation process and v) understanding the study. Facilitators to inviting patients to participate in research often stemmed from specialist nurses’ attitudes, skills and experience. Positive research cultures, effective teamwork and strong relationships between research and clinical teams at the local clinical team level were similarly important. Barriers were reported when specialist nurses felt they were providing patients with insufficient information during the invitation process, and when specialist nurses felt they did not understand studies to their satisfaction. Our study offers several new insights regarding the role of specialist nurses in recruiting patients for research. It shows that strong local research culture and teamwork overcome some wider organisational and workload barriers reported in previous studies. In addition, and in contrast to common practice, our findings suggest research teams may benefit from individualising study training and invitation procedures to specialist nurses’ preferences and requirements. Findings provide a basis for reflection on practice for specialist nurses, research teams, policymakers, and all with an interest in increasing patient participation in research. The online version of this article (doi:10.1186/s12874-016-0204-5) contains supplementary material, which is available to authorized users.