Healthy choices through family history: A community approach to family history awareness

Healthy choices through family history: A community approach to family history awareness
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DOI:
10.1159/000133306
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发表时间:
2008-01-01
期刊:
COMMUNITY GENETICS
影响因子:
--
通讯作者:
McKain, Fredrika
McKain, Fredrika
中科院分区:
其他
文献类型:
--
作者:
Petruccio, Claudia;Shaw, Kenna R. Mills;McKain, Fredrika

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背景:家庭健康史数据在医疗保健中的重要性已得到广泛认可。很少有人报告从自己的家人那里收集过这些信息。研究方法:该项目实施了以社区为基础的方法,为宾夕法尼亚州哈里斯堡的两个少数民族设计和试点一个语言和文化上适当的家庭健康史收集工具包。结果如下:该工具包依靠口头传统和家庭故事,成功地向这些人群介绍遗传学教育和家庭健康史。参与者不仅发现该工具具有吸引力和文化上的适当性,他们还能够获得他们可能与医生分享的信息。结论:虽然范围有限,但该项目为其他社区提供了一个模式,用于设计、试点测试和实施有关家庭健康史的社区公共卫生倡议。版权所有(c)2008 S. Karger AG,巴塞尔。
Background: The importance of family health history data in health care is widely acknowledged. Few individuals report having collected this information from their own family. Methods: This project implemented a community-based approach to design and pilot a linguistically and culturally appropriate family health history collection toolkit for two minority populations in Harrisburg, Pa. Results: The toolkit relied on oral traditions and family stories as a way to successfully introduce genetics education and family health history to these populations. Participants not only found the tool engaging and culturally appropriate, they were also able to obtain information that they were likely to share with their physician. Conclusion: While limited in scope, this project provides a model to other communities for the design, pilot testing, and implementation of a community-based public health initiative regarding family health histories. Copyright (c) 2008 S. Karger AG, Basel.