Health professionals caring for chronically ill adolescents: adolescents' perspectives.

Health professionals caring for chronically ill adolescents: adolescents' perspectives.
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护理慢性病青少年的卫生专业人员:青少年的观点。

DOI:
10.1111/j.1744-6155.1998.tb00029.x
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发表时间:
1998
期刊:
Journal of the Society of Pediatric Nurses : JSPN
影响因子:
--
通讯作者:
R. Woodgate
R. Woodgate
中科院分区:
--
文献类型:
--
作者:
R. Woodgate

文献摘要

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目的 描述患有慢性病的青少年对卫生专业人员如何最好地照顾患有慢性病的青少年的看法。 设计 一项以扎根理论为原则的定性研究,包括理论抽样和数据的持续比较。 设置 参与者的私人医院办公室的家。 参与者 23名青少年,年龄在13岁到16岁之间,他们被诊断出患有糖尿病、哮喘、关节炎、克罗恩病或溃疡性结肠炎。 主要结果衡量标准 开放式、深度访谈法。 结果 出现了八个主题:(1)像对待一个人一样对待我;(2)尝试理解;(3)不要以不同的方式对待我;(4)给我一些鼓励;(5)不要强迫我;(6)给我选择;(7)有幽默感;(8)知道你在做什么。 结论 卫生专业人员在照顾患有慢性病的青少年时,需要采取一种被称为谨慎操作的总体方法。这一方法要求卫生专业人员具有可靠的知识和能力,能够自信和敏感地指导青少年管理他们的疾病。
PURPOSE To describe chronically ill adolescents' perceptions of how health professionals can best care for chronically ill adolescents. DESIGN A qualitative study with tenets from grounded theory, including theoretical sampling and the constant comparison of data. SETTING Participants' homes of private hospital offices. PARTICIPANTS Twenty-three adolescents, 13 to 16 years of age, who were diagnosed with either diabetes, asthma, arthritis, Crohn's disease, or ulcerative colitis. MAIN OUTCOME MEASURES Open-ended, in-depth interview method. RESULTS Eight themes emerged: (1) treat me like a person; (2) try to understand; (3) don't treat me differently; (4) give me some encouragement; (5) don't force me; (6) give me options; (7) have a sense of humor; and (8) know what you are doing. CONCLUSIONS Health professionals need to adopt an overall approach described as careful maneuvering when caring for adolescents with chronic illness. This approach involves the health professional having sound knowledge and the ability to guide adolescents confidently and sensitively in the management of their illness.