Perspectives on Self-Advocacy: Comparing Perceived Uses, Benefits, and Drawbacks Among Survivors and Providers.
Perspectives on Self-Advocacy: Comparing Perceived Uses, Benefits, and Drawbacks Among Survivors and Providers.
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DOI：
10.1188/17.onf.52-59
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发表时间：
2017-01-03
影响因子：
1.9
通讯作者：
Donovan H
中科院分区：
文献类型：
--
作者：
Hagan TH;Rosenzweig M;Zorn K;van Londen J;Donovan H
描述和比较幸存者和提供者对幸存者自我宣传的用途和所感知的好处和缺点的看法。一项横断面、两组、混合方法调查。幸存者是从地方和国家登记处以及宣传组织招募的。提供者是从匹兹堡大学医学中心癌症中心和区域肿瘤护理学会分会招募的。122名女性癌症幸存者和39名提供者参与了他们的直接护理。使用描述性统计对定量调查数据进行了总结，包括平均值和频率。采用内容分析法对定性调查数据进行收集和分析，并对主要主题进行统计和归纳。对女性癌症幸存者自我宣传的用途、益处和缺点的看法。幸存者和提供者认为自我宣传的用途相似但不同。幸存者和提供者普遍同意自我辩护的潜在好处，但对潜在的缺点有不同的看法。幸存者最关心的是寻找和理解信息，他们的问题不会得到回答，并与他们的供应商有一个更坏的关系;供应商关注的是增加诊所的时间和困难制定治疗计划。虽然幸存者和提供者认识到幸存者自我宣传的类似好处，但他们对女性癌症幸存者自我宣传的用途和缺点有不同的看法。在女性癌症幸存者中增加自我宣传的努力必须解决幸存者和提供者对自我宣传的看法和担忧。
To describe and compare survivors’ and providers’ views of the uses of and perceived benefits and drawbacks of survivor self-advocacy. A cross-sectional, two-group, mixed-methods survey. Survivors were recruited from local and national registries and advocacy organizations. Providers were recruited from the University of Pittsburgh Medical Center Cancer Center and a regional Oncology Nursing Society chapter. 122 female cancer survivors and 39 providers involved in their direct care. Quantitative survey data were summarized using descriptive statistics, including means and frequencies. Qualitative survey data were collected and analyzed using content analysis techniques, and main themes were counted and summarized. Perceptions of the uses, benefits, and drawbacks of female cancer survivor self-advocacy. Survivors and providers perceived similar but distinct uses of self-advocacy. Survivors and providers generally agreed on the potential benefits of self-advocacy but had different views of the potential drawbacks. Survivors were most concerned with finding and making sense of information, that their questions would not be answered, and having a worse relationship with their provider; providers were concerned with increases in clinic time and difficulties developing treatment plans. Although survivors and providers recognized similar benefits to survivor self-advocacy, they had different views of the uses and drawbacks of female cancer survivor self-advocacy. Attempts to increase self-advocacy among female cancer survivors must address survivors’ and providers’ views and apprehensions about self-advocacy.