Creation of a linked cohort of children and their parents in a large, national electronic health record dataset.

Creation of a linked cohort of children and their parents in a large, national electronic health record dataset.
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DOI:
10.1097/md.0000000000026950
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发表时间:
2021-08-13
期刊:
影响因子:
1.6
通讯作者:
DeVoe JE
DeVoe JE
中科院分区:
医学4区
文献类型:
--
作者:
Angier H;Giebultowicz S;Kaufmann J;Heintzman J;O'Malley J;Moreno L;DeVoe JE

文献摘要

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为了检查哪些父母保健和健康因素与儿童接受推荐护理的关系最密切,我们必须能够在电子健康记录数据中将儿童与其父母联系起来。然而,没有一种简单的方法可以将这些数据联系起来。确定与同一电子健康记录数据集中至少一位父母有联系的全国儿童队列,并描述他们的人口统计数据。在电子健康记录和描述性社会人口数据中将父母和儿童联系起来的方法。在2007年1月1日至2018年12月12日期间,至少见过一次初级保健临床医生的儿童将被送往人道协调厅国家网络中的社区卫生中心。我们使用紧急联系人和担保人记录字段确定了这些儿童的父母,他们也至少有过一次到网络中的社区卫生中心的经历。共有227,552名儿童的父母有可链接的患者记录。排除后,我们的最终队列包括213,513名具有一个或两个父母链接的不同儿童。82%的孩子只与母亲有联系,14%的孩子只与父亲有联系,4%的孩子同时与母亲和父亲有联系。大多数家庭只有一个相连的孩子(61%)。我们能够在电子健康记录数据中将33%的儿童与父母联系起来,这些数据来自美国各地的大型社区卫生中心网络。利用这些联系的进一步分析将能够审查影响儿童接受推荐保健的多层次因素。
To examine which parental health care and health factors are most strongly associated with a child's receipt of recommended care we must be able to link children to their parents in electronic health record data. Yet, there is not an easy way to link these data. To identify a national cohort of children that link to at least one parent in the same electronic health record dataset and describe their demographics. Methodology to link parents and children in electronic health records and descriptive sociodemographic data. Children with at least one encounter with a primary care clinician between Januray 1, 2007 and December 12, 2018 to a community health center in the OCHIN national network. We identified parents of these children who also had at least one encounter to a community health center in the network using emergency contact and guarantor record fields. A total of 227,552 children had parents with a linkable patient record. After exclusions, our final cohort included 213,513 distinct children with either one or two parent-links. 82% of children linked to a mother only, 14% linked to a father only, and 4% linked to both a mother and a father. Most families consisted of only one linked child (61%). We were able to link 33% of children to a parent in electronic health record data from a large network of community health centers across the United States. Further analyses utilizing these linkages will allow examination of the multi-level factors that impact a child's receipt of recommended health care.