The relationship between quality of life and disability across the lifespan for people with spinal cord injury
The relationship between quality of life and disability across the lifespan for people with spinal cord injury
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DOI：
10.1038/sc.2008.82
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发表时间：
2009-02-01
期刊：
影响因子：
2.2
通讯作者：
Kuipers, P.
中科院分区：
文献类型：
--
作者：
Barker, R. N.;Kendall, M. D.;Kuipers, P.
研究设计：前瞻性横断面调查：目的：比较脊髓损伤（SCI）患者和健康人的生活质量（QOL），并调查生活质量与残疾之间的关系（损伤、活动限制和参与限制）。设置：在澳大利亚昆士兰州为SCI患者提供的社区外展服务。方法：随机抽样的270人谁持续SCI在过去的60年中进行了调查，使用引导电话采访格式。样本来自全州康复服务的档案记录。采用世界卫生组织生活质量评估工具-Bref测量QOL，根据美国脊髓损伤协会分类和二级状况监测工具测量损伤，使用功能独立性测量的运动子量表测量活动限制，使用社区整合测量的参与限制。寿命是根据年龄和受伤后的时间来考虑的。相关性和回归分析，以确定生活质量和残疾的组成部分之间的关系在整个lifesty.Results：生活质量显着较差的人与SCI相比，澳大利亚的规范。它被发现与继发性损伤，活动限制和参与限制有关，但与神经水平，年龄或受伤时间无关。生活质量的单一最重要的预测是继发性损害，而第二个最重要的预测是participation.Conclusion：优化生活质量的整个生命周期，康复服务必须保持其重点功能的实现和尽量减少次要条件，虽然在同一时间，使参与。
Study design: Prospective cross-sectional survey.Objectives: To compare quality of life (QOL) for people with spinal cord injury (SCI) and their able-bodied peers and to investigate the relationship between QOL and disability (impairments, activity limitations and participation restrictions) across the lifespan, for people with SCI.Setting: A community outreach service for people with SCI in Queensland, Australia.Methods: A random sample of 270 individuals who sustained SCI during the past 60 years was surveyed using a guided telephone interview format. The sample was drawn from the archival records of a statewide rehabilitation service. QOL was measured using the World Health Organization Quality of Life Assessment Instrument-Bref, impairment was measured according to the American Spinal Injury Association classification and the Secondary Condition Surveillance Instrument, activity limitations using the motor subscale of the Functional Independence Measure and participation restrictions using the Community Integration Measure. Lifespan was considered in terms of age and time since injury. Correlation and regression analyses were employed to determine the relationship between QOL and components of disability across the lifespan.Results: QOL was significantly poorer for people with SCI compared to the Australian norm. It was found to be associated with secondary impairments, activity limitations and participation restrictions but not with neurological level, age or time since injury. The single most important predictor of QOL was secondary impairments whereas the second most important predictor was participation.Conclusion: To optimize QOL across the lifespan, rehabilitation services must maintain their focus on functional attainment and minimizing secondary conditions, although at the same time enabling participation.