Parent and child perceptions of a self-regulated, home-based exercise program for children with cystic fibrosis.
Parent and child perceptions of a self-regulated, home-based exercise program for children with cystic fibrosis.
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DOI：
10.1097/nnr.0b013e3182a03503
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发表时间：
2013-09
期刊：
影响因子：
2.5
通讯作者：
Orenstein DM
中科院分区：
文献类型：
--
作者：
Happ MB;Hoffman LA;Higgins LW;Divirgilio D;Orenstein DM
尽管有公认的益处，但许多患有囊性纤维化（CF）的儿童并不坚持参加体育活动。很少有实证文献CF儿童的感受和态度对运动计划，父母的作用，在运动中，或影响运动经验的因素，在参与研究。描述CF儿童及其父母在参加为期六个月的自我调节家庭锻炼计划期间的锻炼经历。这项定性描述性研究嵌套在一项自我调节的随机对照试验中，以家庭为基础的锻炼计划使用连续的半结构化访谈，分别在2个月和6个月时与11名有目的地选择的CF儿童及其父母进行访谈。年龄在10-16岁的6名男孩和5名女孩以及父母（9名母亲，4名父亲）共参加了44次访谈。在成绩单中确定了描述儿童和家长对自行车锻炼计划的看法和经验的五个主要主题类别：（a）激励因素;（B）障碍;（c）努力/工作;（d）日常锻炼;（e）持续锻炼。研究参与，父母家庭参与，健康福利，和孩子的个性特征是主要的动机。竞争活动、优先事项和责任是按照规定实施锻炼计划的主要障碍。对于几个（大约一半）计划在研究结束后减少或停止锻炼计划的父母-孩子对，动机减弱，新奇感消失。我们确定了CF儿童自我调节，以家庭为基础的运动计划的动机和障碍，可以在规划未来的运动干预措施，以最大限度地提高CF儿童的健康效益，以及儿童及其家庭的可行性和可接受性。
Despite recognized benefits, many children with cystic fibrosis (CF) do not consistently participate in physical activities. There is little empirical literature regarding the feelings and attitudes of children with CF toward exercise programs, parental roles in exercise, or factors influencing exercise experiences during research participation. To describe the exercise experiences of children with CF and their parents during participation in a six-month program of self-regulated, home-based exercise. This qualitative descriptive study nested within a randomized controlled trial of a self-regulated, home-based exercise program used serial semi-structured interviews conducted individually at two and six months with 11 purposively selected children with CF and their parent(s). Six boys and five girls, ages 10–16, and parents (nine mothers, four fathers) participated in a total of 44 interviews. Five major thematic categories describing child and parent perceptions and experience of the bicycle exercise program were identified in the transcripts: (a) motivators; (b) barriers; (c) effort/work; (d) exercise routine; (e) sustaining exercise. Research participation, parent-family participation, health benefits, and the child’s personality traits were primary motivators. Competing activities, priorities and responsibilities were the major barriers to implementing the exercise program as prescribed. Motivation waned and the novelty wore off for several (approximately half) parent-child dyads, who planned to decrease or stop the exercise program after the study ended. We identified motivators and barriers to a self-regulated, home-based exercise program for children with CF that can be addressed in planning future exercise interventions to maximize the health benefits for children with CF and the feasibility and acceptability to the children and their families.