The burden of filial piety: A qualitative study on caregiving motivations amongst family caregivers of patients with cancer in Singapore
The burden of filial piety: A qualitative study on caregiving motivations amongst family caregivers of patients with cancer in Singapore
复制标题
DOI：
10.1080/08870446.2016.1204450
复制
发表时间：
2016-01-01
影响因子：
3.3
通讯作者：
Mahendran, R.
中科院分区：
文献类型：
--
作者：
Ng, H. Y.;Griva, K.;Mahendran, R.
目标。本研究探讨了(1)新加坡家庭癌症护理的动机和面临的挑战，(2)提出了一个可能的框架，以指导未来护理人员设计的文化敏感性工作。在新加坡一家公立医院接受癌症治疗的患者的20名护理人员接受了采访。采用半结构化访谈形式和归纳专题分析对数据进行分析。护理人员被问及他们护理的动机以及他们面临的挑战。照护者的动机分为三类：个人价值和成就感、出于孝道等社会期望的照护以及实际需要。挑战被分为人际挑战、披露和寻找平衡。不同主要动机的照顾者对这些挑战的反应各不相同。更多自主的照顾者引用了学习点，并比不那么自主的照顾者更有效地重新排序，后者报告了更多的内部冲突，对自己处境的控制更少。在新加坡和亚洲，家庭照护的社会文化价值并不一致被认为是积极的，对于主要出于外部动机提供照护的照护者来说，这可能是一种负担。随着家庭照护需求的增加，对自主行为倾向较弱的照护者提供有针对性的社会心理支持，可能会预防照护者的倦怠和负担。
Objective. This study explores (1) the motivations and challenges facing family caregiving for cancer in Singapore and (2) suggests a possible framework to guide culturally sensitive future work on caregivers.Design. Twenty caregivers of patients being treated for cancer at a public hospital in Singapore were interviewed. A semi-structured interview format and inductive thematic analysis were used to analyse the data. Caregivers were asked about their motivations for caregiving and the challenges they faced.Results. Caregivers' motivations grouped into three categories: personal value and fulfilment, giving care because of societal expectations such as filial piety, and practical need. Challenges were grouped into interpersonal challenges, disclosure and finding balance. Caregivers with different primary motivations varied in their responses to these challenges. More autonomous caregivers cited learning points and reprioritised more effectively than less autonomous caregivers, who reported more internal conflict and less control over their situation.Conclusions. In Singapore and Asia, sociocultural values of family caregiving are not uniformly experienced as positive, and may be burdensome for caregivers who give care primarily for extrinsic motivations. As family caregiving needs increase, targeted psychosocial support for caregivers with less autonomous behavioural orientations may pre-empt caregiver burnout and burden.