'Whose agenda? Who knows best? Whose voice?' Co-creating a technology research roadmap with autism stakeholders
'Whose agenda? Who knows best? Whose voice?' Co-creating a technology research roadmap with autism stakeholders
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DOI：
10.1080/09687599.2019.1624152
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发表时间：
2019-06-17
影响因子：
2.4
通讯作者：
Brosnan, Mark
中科院分区：
文献类型：
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作者：
Parsons, Sarah;Yuill, Nicola;Brosnan, Mark
技术在自闭症患者的学习和参与中发挥着至关重要的作用，但大多数都是根据残疾的医学模型来概念化的。在这次利益相关者审查中，分析了为期两年的自闭症和技术研讨会系列的240名参与者的评论，以共同构建对研究如何更包容地发展的理解。我们的社会文化分析表明，利益相关者对技术在生活的许多领域可以发挥的作用非常积极，但这些技术需要根据自闭症患者及其家庭的需求和偏好进行开发和评估。我们提出了一个包容性的共同社会框架的基础上的社会包容，观点，参与和代理的核心主题的研究。这一框架要求实地认识到，目前的一些做法是排斥性的，需要承诺采取行动，以便作出积极的改变。
Technologies play vital roles in the learning and participation of autistic people and yet have mostly been conceptualised according to a medical model of disability. In this stakeholder review, the comments of 240 participants from a two-year seminar series focusing on autism and technology were analysed to co-construct an understanding of how research could develop more inclusively. Our socio-cultural analysis shows that stakeholders were very positive about the roles that technologies can play in many areas of life, but that these technologies need to be developed and evaluated according to the needs and preferences of autistic people and their families. We propose an inclusive common social framework for research based on the core themes of social inclusion, perspectives, and participation and agency. Such a framework requires the field to recognise that some current practices are exclusionary and that a commitment to action is needed in order to make positive changes.