Factors Associated With Communicative Participation in Amyotrophic Lateral Sclerosis.
Factors Associated With Communicative Participation in Amyotrophic Lateral Sclerosis.
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与肌萎缩侧索硬化症的交流参与相关的因素。
DOI：
10.1044/2017_jslhr-s-16-0206
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发表时间：
2017
期刊：
影响因子：
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通讯作者：
Mach,Helen
中科院分区：
文献类型：
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作者：
Yorkston,Kathryn;Baylor,Carolyn;Mach,Helen
目的肌萎缩侧索硬化症患者经常出现延髓损伤和构音障碍，这可能会限制他们参与日常交流的能力。本研究的目的是检查可能导致沟通参与限制的选定变量。方法居住在社区的患有肌萎缩侧索硬化症的参与者（N = 70）报告沟通变化但继续使用自然言语，完成了一项调查，包括沟通参与项目库、人口统计数据（年龄、性别、生活状况、就业状况、教育程度和自诊断以来的时间）以及自我报告的症状相关变量（体力活动、情绪问题、疲劳、疼痛、言语严重程度、言语）使用、认知和沟通技巧）。为了确定沟通参与限制的预测因子，将这些变量输入后向逐步多元线性回归分析。结果最终模型中包含三个变量（言语严重程度、吞咽严重程度和言语使用），占变异性的 55%。结论在此样本中，更好的言语和吞咽技能以及更高的言语使用与更好的沟通参与相关。因此，在做出有关干预的临床决策时，临床医生应继续努力以言语和吞咽能力为目标，同时认识到可能限制交流参与的其他变量。
PurposePeople with amyotrophic lateral sclerosis frequently experience bulbar impairment and dysarthria that may restrict their ability to take part in everyday communication situations. The aim of this study is to examine selected variables that may contribute to restrictions in communicative participation.MethodCommunity-dwelling participants with amyotrophic lateral sclerosis (N= 70) who reported communication changes but continued to use natural speech completed a survey, including the Communicative Participation Item Bank, demographics (age, sex, living situation, employment status, education, and time since diagnosis), and self- reported symptom-related variables (physical activity, emotional problems, fatigue, pain, speech severity, speech usage, and cognitive and communication skills). To identify predictors of restrictions in communicative participation, these variables were entered into a backward stepwise multiple linear regression analysis.ResultsThree variables (speech severity, swallowing severity, and speech usage) were included in the final model and accounted for 55% of the variability.ConclusionsBetter speech and swallowing skills and higher speech usage are associated with better communicative participation in this sample. Thus, when making clinical decisions regarding intervention, clinicians should continue their efforts to target speech and swallow abilities, while recognizing other variables that have the potential of restricting communicative participation.