Quality of dying and death in patients with interstitial lung disease compared with lung cancer: an observational study
Quality of dying and death in patients with interstitial lung disease compared with lung cancer: an observational study
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DOI：
10.1136/thoraxjnl-2020-215917
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发表时间：
2021-03-01
期刊：
影响因子：
10
通讯作者：
Suda, Takafumi
中科院分区：
文献类型：
--
作者：
Koyauchi, Takafumi;Suzuki, Yuzo;Suda, Takafumi
背景目前对间质性肺疾病（ILD）患者的临终质量（QODD）和临终干预的了解有限。因此，ILD患者和肺癌（LC）患者之间的QODD和临终干预措施的差异仍然知之甚少。MethodsThe本研究的主要目的是探讨与ILD死亡与LC死亡的患者之间的QODD和临终干预措施的差异。我们进行了一个邮件调查，以量化的QODD的丧亲家庭的角度使用良好的死亡清单（GDI）得分。此外，我们研究了结束生命的干预医疗图表review.ResultsOf 361例连续分析结束生命的干预措施，167例患者的丧亲家庭完成问卷进行了分析QODD。ILD患者QODD的GDI评分低于LC患者（p=0.04），特别是在与“身心痛苦缓解”和“预后意识和参与决策”相关的领域（分别为p=0.02）。在临终干预中，ILD患者不太可能接受专门的姑息治疗服务（8.5% vs 54.3%; p
BackgroundThere is limited knowledge regarding the quality of dying and death (QODD) and end-of-life interventions in patients with interstitial lung disease (ILD). Hence, differences in QODD and end-of-life interventions between patients with ILD and those with lung cancer (LC) remain poorly understood.MethodsThe primary aim of this study was to explore the differences in QODD and end-of-life interventions among patients dying with ILD versus those dying with LC. We performed a mail survey to quantify the QODD of a bereaved family's perspective using the Good Death Inventory (GDI) score. Moreover, we examined the end-of-life interventions by medical chart review.ResultsOf 361 consecutive patients analysed for end-of-life interventions, 167 patients whose bereaved families completed questionnaires were analysed for QODD. Patients with ILD had lower GDI scores for QODD than those with LC (p=0.04), particularly in domains related to 'physical and psychological distress relief' and 'prognosis awareness and participation in decision making' (p=0.02, respectively). In end-of-life interventions, patients with ILD were less likely to receive specialised palliative care services (8.5% vs 54.3%; p