Aesthetic outcome of cleft lip and palate treatment. Perceptions of patients, families, and health professionals compared to the general public
Aesthetic outcome of cleft lip and palate treatment. Perceptions of patients, families, and health professionals compared to the general public
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DOI：
10.1016/j.jcms.2012.11.034
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发表时间：
2013-10-01
影响因子：
3.1
通讯作者：
Topouzelis, Nikolaos
中科院分区：
文献类型：
--
作者：
Gkantidis, Nikolaos;Papamanou, Despina A.;Topouzelis, Nikolaos
唇腭裂治疗的美学效果是非常重要的，因为它的复杂的管理和心理社会的后果，这一缺陷。本研究的目的是评估不同组别的腭裂手术后患者的美学评价，并调查评估与生活质量参数的潜在关联。对12例单侧唇腭裂成人患者的头部照片进行了评价。调查问卷由患者及其父母分发和回答。非专业人员和专业人员的组内一致性较高（α> 0.8）。组间协议是高的外行和专业人士，但不是当患者和/或父母进行了测试。专业人士，父母和病人更满意病人的外观比外行人，虽然在一般情况下，所有群体都不是很满意。对美学的低满意度与患者自我报告的裂隙对社会活动和职业生活的影响增加相关（0.56 < rho < 0.74，p < 0.05）。这些发现突出了观察到的唇腭裂对患者的社会活动和职业生活的负面影响，并强调了这组患者需要最高质量的手术结果。(C)2012年欧洲颅颌面外科协会。由爱思唯尔有限公司出版。保留所有权利。
The aesthetic outcome of cleft treatment is of great importance due to its complex management and the psychosocial consequences of this defect. The aim of the study was to assess the aesthetic evaluations of patients following cleft surgery by various groups and investigate potential associations of the assessments with life quality parameters. Head photos of 12 adult patients with treated unilateral cleft lip and palate were evaluated by laypeople and professionals. A questionnaire was distributed and answered by the patients and their parents. Intra-panel agreement was high (alpha > 0.8) for laypeople and professionals. Between-groups agreement was high for both laypeople and professionals, but not when patients and/or parents were tested. Professionals, parents, and patients were more satisfied with patients' appearance than laypeople, although in general all groups were not highly satisfied. Low satisfaction with aesthetics correlated with increased self-reported influence of the cleft in the patients' social activity and professional life (0.56 < rho < 0.74, p < 0.05). These findings highlight the observed negative influence of the cleft on the patient's social activity and professional life and underline the need for the highest quality of surgical outcome for this group of patients. (C) 2012 European Association for Cranio-Maxillo-Facial Surgery. Published by Elsevier Ltd. All rights reserved.