Cancer diagnosis, treatment and care: A qualitative study of the experiences and health service use of Roma, Gypsies and Travellers
Cancer diagnosis, treatment and care: A qualitative study of the experiences and health service use of Roma, Gypsies and Travellers
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DOI：
10.1111/ecc.13439
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发表时间：
2021-05-06
影响因子：
2.1
通讯作者：
Fenlon, Deborah
中科院分区：
文献类型：
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作者：
Condon, Louise;Curejova, Jolana;Fenlon, Deborah
早期诊断和治疗是减少癌症死亡的关键，但黑人和少数民族（BME）群体更有可能在进入癌症护理系统时遇到延误。罗姆人，吉普赛人和旅行者是少数民族谁的经验极端的健康inequality.Objective探讨癌症的诊断，治疗和护理的人谁自我认同为罗姆人或吉普赛人和Travellers.Methods的参与性定性的方法。同行研究人员进行了半结构化的采访（n = 37）和一个焦点小组（n = 4）与社区成员在威尔士和英格兰，英国。结果癌症宿命论正在下降，但罗姆人，吉普赛人和旅行者的经验障碍，癌症医疗服务的用户，服务提供者和组织层面。所有群体的沟通都有问题，罗姆人参与者报告说，在初级保健中缺乏口译员。明确的沟通和信任的关系与卫生专业人员的高度重视，最常见的三级care.Conclusion本研究表明，罗姆人，吉普赛人和旅行者的动机，以获得医疗保健癌症的诊断和治疗，但在初级保健经历的障碍，可以防止或延迟获得诊断和治疗服务。组织变革，加上卫生专业人员文化能力的提高，有可能减少癌症早期发现方面的不平等。
Background Early diagnosis and treatment are key to reducing deaths from cancer, but people from Black and Minority Ethnic (BME) groups are more likely to encounter delays in entering the cancer care system. Roma, Gypsies and Travellers are ethnic minorities who experience extreme health inequalities.Objective To explore the experiences of cancer diagnosis, treatment and care among people who self-identify as Roma or Gypsies and Travellers.Methods A participatory qualitative approach was taken. Peer researchers conducted semi-structured interviews (n = 37) and one focus group (n = 4) with community members in Wales and England, UK.Results Cancer fatalism is declining, but Roma, Gypsies and Travellers experience barriers to cancer healthcare at service user, service provider and organisational levels. Communication was problematic for all groups, and Roma participants reported lack of access to interpreters within primary care. Clear communication and trusting relationships with health professionals are highly valued and most frequently found in tertiary care.Conclusion This study suggests that Roma, Gypsies and Travellers are motivated to access health care for cancer diagnosis and treatment, but barriers experienced in primary care can prevent or delay access to diagnostic and treatment services. Organisational changes, plus increased cultural competence among health professionals, have the potential to reduce inequalities in early detection of cancer.