The experience of being 30-45 years of age and depending on haemodialysis treatment: a phenomenological study

The experience of being 30-45 years of age and depending on haemodialysis treatment: a phenomenological study
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DOI:
10.1111/j.1471-6712.2009.00764.x
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发表时间:
2010-12-01
影响因子:
1.9
通讯作者:
Wann-Hansson, Christine
Wann-Hansson, Christine
中科院分区:
医学3区
文献类型:
--
作者:
Herlin, Caroline;Wann-Hansson, Christine

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这项研究的目的是描述30至45岁的血液透析(HD)患者如何体验他们对HD治疗的依赖。9名接受HD治疗的患者接受了采访。根据乔尔吉的四个基本原则对文本进行分析。在30到45岁之间,需要HD治疗意味着经历一种完全缺乏自由的经历,这一点通过分主题得到了说明:恐惧感、对照顾者的依赖、透析中损失的时间、孤独感以及等待新肾脏的压力。参与者认为,依赖HD治疗并不是一种真正的生活,他们正在经历某种双重生活:透析的生活和不接受治疗的普通生活。对HD治疗的依赖也表现为一种生活停滞不前的感觉。调查结果亦显示,参加者预期会遇到称职的医护专业人员,他们强调为较年轻的HD患者提供支援的重要性,注重他们应付生活状况的能力。
The aim of this study was to describe how haemodialysis (HD) patients, between 30 and 45 years of age, experience their dependence on HD treatment. Nine patients undergoing HD treatment were interviewed. The transcribed texts were analysed according to Giorgi's four basic principles. Being between 30 and 45 years of age and needing HD treatment meant experiencing a total lack of freedom, which was illuminated through the sub-themes: a sense of fear, dependency on caregivers, time lost in dialysis, feelings of loneliness and the stress of being on the waiting list for a new kidney. The participants felt that being dependent on HD treatment was 'not a real life' and that they were experiencing a double life of sorts: the life of dialysis versus their ordinary life outside treatment. The dependency on HD treatment was also expressed as a feeling that life 'stood still.' The results also indicate that the participants expected to encounter competent healthcare professionals, and they emphasised the importance of providing support for younger HD patients by focusing on their ability to cope with their life situation.