Adverse events after first COVID-19 vaccination in patients with autoimmune diseases.
Adverse events after first COVID-19 vaccination in patients with autoimmune diseases.
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DOI：
10.1016/s2665-9913(21)00181-8
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发表时间：
2021-08
期刊：
影响因子：
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通讯作者：
Wolbink G
中科院分区：
文献类型：
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作者：
Boekel L;Kummer LY;van Dam KPJ;Hooijberg F;van Kempen Z;Vogelzang EH;Wieske L;Eftimov F;van Vollenhoven R;Kuijpers TW;van Ham SM;Tas SW;Killestein J;Boers M;Nurmohamed MT;Rispens T;Wolbink G
2021年6月18日https://doi。数字平台对代表性不足群体的多样性和参与产生了不利影响，原因是技术熟练程度、技术获取、宣传活动的能力不一，以及年龄较大群体的代表性较低。由于新冠肺炎疫情，UCLH和牛津大学等较新的团体从一开始就在虚拟平台上建立起来。这样做的一个好处是，由于减少了旅行时间，忙碌的个人的参与度增加了。然而，虚拟平台的使用限制了患者合作伙伴以非正式方式相互了解的能力（UCLH通过小组讨论缓解了这一问题），并限制了不容易访问互联网的人的参与。未来的患者和公众参与活动很可能会回归到面对面的元素，要么是完全面对面的活动，要么是混合形式。虚拟会议的优势不容忽视，它将有助于规划会议，也有助于接触青少年和青年患者等较年轻的人群。患者参与风湿病研究是至关重要的，因为它对研究人员、临床医生和患者都有好处，应该以一种有组织的方式进行。COVID-19大流行等前所未有的挑战导致在开展患者和公众参与活动以及确定重点伙伴关系方面发生了转变。适应虚拟平台已经彻底改变了COVID-19期间的患者和公众参与活动，但我们应该注意，我们的努力仍然具有包容性，患者代表来自各种人口统计数据，以确保研究重点代表更广泛的社区，同时继续将创新思维应用于与患者开展动态、有影响力的合作的方式。
June 18, 2021 https://doi. org/10.1016/S2665-9913 (21) 00181-8 digital platforms has had an adverse impact on diversity and participation from under-represented groups due to variable technology proficiency, access to technology, ability to advertise events, and a lower representation from older age groups. Newer groups, such as those in UCLH and Oxford, have been set up on virtual platforms from the outset due to the pandemic. A benefit of this is increased participation from busy individuals due to the removal of travel time. However, the use of virtual platforms limits the ability of patient partners to get to know each other in an informal manner (mitigated by small-group breakout discussions by UCLH) and restricts participation from people who do not have easy access to the internet. It is likely that future patient and public involvement events will return to having an in-person element, either as entirely face-to-face events or a hybrid format. The advantages of virtual meetings will not be overlooked and will be useful for planning meetings and also reaching the younger demographics, such as adolescent and young adult patients. Patient involvement in rheumatology research is vital due to its benefits to researchers, clinicians, and patients, and should be carried out in a structured manner. Unprecedented challenges such as the COVID-19 pandemic have resulted in a transformation with regard to the conduct of patient and public involvement activities and priority setting partnerships. Adapting virtual platforms has revolutionised patient and public involvement activities during COVID-19, but we should be mindful that our efforts remain inclusive, with patient representation from a range of demographics to ensure that the research focus represents the wider community, while continuing to apply innovative thinking to ways to develop dynamic, impactful collaborations with patients.