Unmet needs among adolescent cancer patients: A pilot study
Unmet needs among adolescent cancer patients: A pilot study
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青少年癌症患者未满足的需求：一项试点研究
DOI：
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发表时间：
2007
影响因子：
2.2
通讯作者：
M. Sexton
中科院分区：
文献类型：
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作者：
S. Palmer;A. Mitchell;K. Thompson;M. Sexton
目的：青少年癌症患者对目前的卫生系统和与他们一起工作的专业人员提出了独特的挑战。在世界各地，人们越来越认识到，这一特殊群体的病人的需要可能无法满足现有的服务，无论是在儿科或成人系统。在澳大利亚，这是一个新的研究领域，人们对这一患者群体未得到满足的生理、心理和社会需求知之甚少。本研究报告的结果进行了重点小组探讨这些问题。方法：6名年轻人，平均年龄为17岁6个月的诊断，参加了一个2小时的焦点小组。采用定性分析方法来研究主题。结果如下：与会者确定了与三大类有关的一些问题：信息提供、治疗过程和生存。结果的意义：研究结果支持先前记录的证据，表明为该年龄组提供的癌症服务存在差距。重要的是，这些差距可以通过改善青少年多学科团队的服务和对卫生保健专业人员进行专门培训来缩小。
Objective: Adolescents with cancer pose a unique challenge to current health systems and the professional working with them. Throughout the world, it is increasingly recognized that the needs of this particular group of patients may not be met through existing services within either the pediatric or adult systems. In Australia, this is a new area of research, and little is known about the unmet physical, psychological, and social needs of this patient group. This study reports the outcomes of a focus group conducted to explore these issues. Methods: Six young people, with a mean age at diagnosis of 17 years and 6 months, participated in a 2-h focus group. A qualitative analytic approach was utilized to examine themes. Results: The participants identified a number of concerns relating to three broad categories: information provision, treatment processes, and survivorship. Significance of results: The research findings support previously documented evidence that indicate gaps in cancer services provided to this age group. Importantly, these gaps can be narrowed by improving access to adolescent multidisciplinary teams and introducing specific training for health care professionals.