Patients' understanding of telemedicine terms required for informed consent when translated into Kiswahili.
Patients' understanding of telemedicine terms required for informed consent when translated into Kiswahili.
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DOI：
10.1186/s12889-018-5499-1
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发表时间：
2018-05-03
影响因子：
4.5
通讯作者：
Mars M
中科院分区：
文献类型：
--
作者：
Odhiambo R;Mars M
在非洲，获得专科医疗服务的机会往往有限，远程医疗，即利用信息和通信技术提供远程保健，可有助于增加获得保健的机会。知情同意被认为是道德实践的基石，特别是当技术和技术被认为是新的和/或未经证实的时候。建议以患者的母语获得知情同意书。然而，许多非洲语言没有跟上技术的步伐，缺乏描述计算和技术术语所需的词汇和术语。此外，即使存在，患者也可能不理解这些单词和术语。这影响了知情同意的有效性。在同意过程中解释远程医疗时使用的40个相关计算机术语和词汇被选定并翻译成斯瓦希里语。肯尼亚基利菲县医院门诊部的病人参加了这项研究。本研究包括两个阶段。在第一个测试中，50人被问到他们是否理解翻译的单词和术语，并能够解释它们的含义。在第二组（n = 42）中，他们被要求解释翻译词的含义，原始英语单词，以及那些不能翻译的单词。在40个术语中，有14个无法翻译（35%）。基利菲县医院共有92人参加。平均年龄31.2 ± 10.6岁，70.7%为女性，55.4%来自农村地区。超过一半的受访者不了解视频会议，存储和转发，数码照片，无线，万维网，防病毒或电子邮件中的任何一种语言。没有人理解远程医疗、防火墙、加密、解密和远程诊断这些词。目前，斯瓦希里语远程医疗不太可能获得有效的知情同意。需要有创新的解决办法，以克服语言无法跟上技术步伐的障碍及其对同意的影响。
In Africa, where access to specialist medical services is often limited, telemedicine, the use of information and communication technologies for the provision of healthcare at a distance, can contribute towards enhancing access to healthcare. Informed consent is considered the cornerstone of ethical practice, especially when technology and techniques are considered new and or unproven. It is advised that informed consent should be gained in the patient’s mother tongue. However, many African languages have not kept pace with technology and lack the words and terms needed to describe computing and technical terms. Additionally, even when present, patients may not understand these words and terms. This affects the validity of informed consent given. Forty relevant computer terms and words used when explaining telemedicine during the consent process were selected and translated into Kiswahili. Patients at the outpatient department of the Kilifi County Hospital in Kenya participated. The study consisted of two phases. In the first, 50 people were asked whether they understood the translated words and terms and were able to explain their meaning. In the second (n = 42) they were asked to explain the meaning of the translated word, the original English word, and those words that could not be translated. Of the 40 terms, 14 could not be translated (35%). A total of 92 people attending the Kilifi County Hospital participated. Their average age was 31.2 ± 10.6 y, 70.7% were female and 55.4% were from rural areas. More than half of the respondents did not understand videoconference, store and forward, digital photograph, wireless, World Wide Web, antivirus or email in either language. No-one understood the words telemedicine, firewall, encryption, decryption and tele-diagnosis. Currently it is unlikely that valid informed consent can be obtained for a telemedicine encounter in Kiswahili. Innovative solutions are required to overcome the barrier of languages failing to keep pace with technology and their effect on consent.
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影响因子：
2.2
作者：
Ezeome, Emmanuel R.;Marshall, Patricia A.
通讯作者：
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影响因子：
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通讯作者：
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