"You Cannot Offer Such a Suggestion": Designing for Family Caregiver Input in Home Care Systems

"You Cannot Offer Such a Suggestion": Designing for Family Caregiver Input in Home Care Systems
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“你不能提供这样的建议”:在家庭护理系统中考虑家庭护理人员的意见进行设计

DOI:
10.1145/3313831.3376607
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发表时间:
2020
期刊:
Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems
影响因子:
--
通讯作者:
G. Koh
G. Koh
中科院分区:
--
文献类型:
--
作者:
P. Foong;Charis Anne Lim;Joshua Wong;Chang Siang Lim;S. Perrault;G. Koh

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以前的工作密切关注使用患者生成的数据来实现医疗保健专业人员远程评估和监测的挑战。在本文中,我们检查家庭照顾者谁作为代理谁可能没有能力捕捉必要的数据的病人。我们与职业治疗师合作开发了一个应用程序,由职业治疗师在家庭护理人员的协助下远程评估患者家中的安全性。我们与家庭护理人员一起评估了该应用程序,发现家庭护理人员和医疗保健专业人员之间的沟通有两个独特的特点:护理人员希望能够引导医疗保健专业人员的注意力,以支持在家解决问题,并且他们包括他们对如何最好地满足患者健康需求的看法。我们讨论这些发现的重要性,为家庭系统在长期慢性护理领域。
Previous work has looked closely at the challenges of using patient-generated data to enable remote assessment and monitoring by healthcare professionals. In this paper, we examine family caregivers who act as proxies for patients who may not have the capacity of capturing the necessary data. We worked with occupational therapists to develop an application for remote assessment of the safety of patients' homes by occupational therapists with the assistance of family caregivers. We evaluated the application with family caregivers and found two features unique to communication between family caregivers and healthcare professionals: Caregivers want to be able to direct healthcare professionals' attention to support problem-solving at home, and they include their perspective on how to best meet the patient's health needs. We discuss the importance of these findings for home systems in the domain of long-term chronic care.