Patients' experiences of palliative care in the home -: A phenomenological study of a Swedish sample
Patients' experiences of palliative care in the home -: A phenomenological study of a Swedish sample
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DOI：
10.1097/00002820-200401000-00008
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发表时间：
2004-01-01
期刊：
影响因子：
2.6
通讯作者：
Berterö, C
中科院分区：
文献类型：
--
作者：
Appelin, G;Berterö, C
近年来，对姑息治疗的兴趣迅速扩大已成为卫生保健发展的一个显著特征。姑息治疗意味着同时关注病人的医疗、护理、精神、情感和社会需求。本研究的主要目的是了解病人在家接受由地区护士提供的缓和疗护的经验。研究设计受到乔尔吉现象学的影响。对6例确诊为癌症并在家接受姑息治疗的患者进行访谈，并对访谈记录进行分析。访谈在患者家中进行。研究结果显示，安宁疗护体验的实质意义可描述为“不确定的安全”。这种本质的意义通过4个主题来表达，分别是“在家安全但不安全”、“无力感”、“日常生活的变化”、“对未来的希望和信念”。研究结果指出，良好的团队合作和资源对于促进患者在自己家中获得安全体验的重要性。应该注意的是，病人和他们的近亲是团队的成员。
In recent times the rapid expansion of interest in palliative care has become a significant feature of health care development. Caring in the palliative way means simultaneous attention to the medical, nursing, spiritual, emotional, and social needs of the patient. The main purpose of the present study has been to obtain an understanding of patients' experiences of palliative care at home with service from district nurses. The research design is influenced by Giorgi's phenomenology. Six patients diagnosed with cancer and receiving palliative care at home were interviewed and the transcribed interviews were analyzed. Interviews were conducted in the patients' homes. The findings show that the essential meaning of the patients' experiences of palliative home care can be described as "uncertain safety." This meaning of essence is explicated by 4 themes, which are labeled "Safe but unsafe at kome," "A sense of powerlessness," "Change of everyday life," and "Hope and belief in the future." The findings of the study point out the importance of well functioning teamwork and resources to facilitate patients experiences of safety in their own homes. It should be noted that the patient and their next of kin are members of the team.