Attitudes and dilemmas of caregivers supporting people with intellectual disabilities who have diabetes
Attitudes and dilemmas of caregivers supporting people with intellectual disabilities who have diabetes
复制标题
DOI：
10.1016/j.pec.2011.11.010
复制
发表时间：
2012-06-01
影响因子：
3.5
通讯作者：
Lantman-de Valk, Henny van Schrojenstein
中科院分区：
文献类型：
--
作者：
Cardol, Mieke;Rijken, Mieke;Lantman-de Valk, Henny van Schrojenstein
目的：探讨如何专业照顾者在社区生活安排支持轻度或中度智力残疾（ID）的人有diabetes.Methods：一项定性研究，13名照顾者参加了半结构化interviews.Results：专业照顾者支持糖尿病护理几乎完全是针对管理药物和控制食物摄入。护理人员希望提供以人为本的护理，但受到保护客户健康与尊重自主权之间冲突的阻碍。护理人员都没有接受过支持自我管理的培训;他们对糖尿病的知识有限。少数从事他们的客户在自我管理的重要性，强调了积极和协作的approach.Conclusion：这项研究提供了第一次深入了解的挑战，专业的照顾者的经验，当一个客户端ID有糖尿病。似乎需要对护理人员进行更多的教育。自我管理支持可能会受益于护理人员之间关于以人为本的护理和慢性病ID患者自我管理的共识。实践影响：提高护理人员对支持患有ID和慢性病的人的自我管理重要性的认识至关重要。讨论实践的例子，根据现有的知识发展自主性将有助于他们的认识。(C)2011爱思唯尔爱尔兰有限公司保留所有权利。
Objective: To explore how professional caregivers in communal living arrangements support people with a mild or moderate intellectual disability (ID) who have diabetes.Methods: A qualitative study, 13 caregivers participated in semi-structured interviews.Results: Professional caregiver support in diabetes care is almost solely directed towards administering medication and controlling food intake. Caregivers want to provide person-centered care but are hindered by a conflict between protecting a client's health and at the same time respecting autonomy. None of the caregivers had received training in supporting self-management; their knowledge about diabetes is limited. The few that engaged their client in self-management stressed the importance of a positive and collaborative approach.Conclusion: This study provides a first insight into the challenges that professional caregivers experience when a client with ID has diabetes. More education for caregivers seems needed. Self-management support is likely to benefit from consensus among caregivers about what comprises person-centered care and self-management in people with ID who have a chronic disease.Practice implications: Increasing caregivers' awareness of the importance of supporting self-management in people with ID and a chronic disease is essential. Discussing practice examples in the light of existing knowledge about developing autonomy will contribute to their awareness. (C) 2011 Elsevier Ireland Ltd. All rights reserved.