A biopsychosocial model for the management of patients with sickle-cell disease transitioning to adult medical care.
A biopsychosocial model for the management of patients with sickle-cell disease transitioning to adult medical care.
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DOI：
10.1007/s12325-015-0197-1
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发表时间：
2015-04
影响因子：
3.8
通讯作者：
Kalinyak, Karen A.
中科院分区：
文献类型：
--
作者：
Crosby, Lori E.;Quinn, Charles T.;Kalinyak, Karen A.
镰状细胞病 (SCD) 患者的寿命持续延长，资源丰富国家的大多数受影响个体现已活到成年。这就需要从儿科医疗保健向成人医疗保健的成功过渡。对 SCD 过渡期患者的护理通常由初级保健提供者负责，他们可能不完全了解患者面临的许多挑战和问题以及当前 SCD 的管理策略。在本次综述中，我们的目标是缩小初级保健提供者和治疗过渡性 SCD 患者的专家之间的知识差距。我们描述了这些患者遇到的挑战和问题，并提出了一种生物心理社会多学科方法来管理已识别的问题。还描述了这种方法的例子，例如以过渡为重点的综合护理模式和质量改进合作，有可能改善成年期的健康结果。本文的在线版本 (doi:10.1007/s12325-015-0197-1) 包含补充材料，可供授权用户使用。
The lifespan of patients with sickle-cell disease (SCD) continues to increase, and most affected individuals in high-resource countries now live into adulthood. This necessitates a successful transition from pediatric to adult health care. Care for transitioning patients with SCD often falls to primary care providers who may not be fully aware of the many challenges and issues faced by patients and the current management strategies for SCD. In this review, we aim to close the knowledge gap between primary care providers and specialists who treat transitioning patients with SCD. We describe the challenges and issues encountered by these patients, and we propose a biopsychosocial multidisciplinary approach to the management of the identified issues. Examples of this approach, such as transition-focused integrated care models and quality improvement collaboratives, with the potential to improve health outcomes in adulthood are also described. The online version of this article (doi:10.1007/s12325-015-0197-1) contains supplementary material, which is available to authorized users.
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