Caregiver burden, family accommodation, health, and well-being in relatives of individuals with hoarding disorder
Caregiver burden, family accommodation, health, and well-being in relatives of individuals with hoarding disorder
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DOI：
10.1016/j.jad.2014.01.023
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发表时间：
2014-04-01
影响因子：
6.6
通讯作者：
Mataix-Cols, David
中科院分区：
文献类型：
--
作者：
Drury, Helena;Ajmi, Sana;Mataix-Cols, David
背景：囤积障碍（HD）是DSM-5中的一个新的诊断实体，与实质性的功能障碍和家庭挫折有关，但缺乏充分表征样本的数据。方法：参与者为37名符合DSM-5标准的HD个体，55名符合HD标准个体的亲属，对照组为51名自我认同的收集者和25名收集者的亲属。所有参与者都完成了临床医生对HD的诊断访谈和一系列健康、幸福和损害的标准化在线测量。结果：HD患者及其亲属均存在严重的功能障碍。与收藏者亲属相比，HD亲属报告了更大的照顾负担和对囤积行为的适应。感知到的脏乱程度、同住、年龄增长是HD患者亲属照顾负担和功能损害的显著预测因子。局限性：使用自我认定的HD个体可能会对具有相对较好的洞察力的参与者产生偏见。尽管使用举报人报告的数据提供了一些独立的验证，但不能排除自我报告症状中的主观偏差。结论：HD与患者及其亲属的实质性功能损害有关。HD亲属所经历的照顾者负担水平与文献中报道的痴呆症患者亲属的负担水平相当或更高。研究结果表明，HD患者的亲属可能会从增加的支持中受益，并建议让家庭成员参与HD治疗可能是有益的。(C) 2014 Elsevier By。版权所有，
Background: Hoarding Disorder (HD), a new diagnostic entity in DSM-5, is associated with substantial functional impairment and family frustration but data from well-characterized samples is lacking.Method: Participants were 37 individuals meeting DSM-5 criteria for HD, 55 relatives of individuals meeting criteria for HD, and comparison groups of 51 self-identified collectors and 25 relatives of collectors. All participants completed a clinician-administered diagnostic interview for HD and an online battery of standardized measures of health, well-being, and impairment.Results: Substantial functional impairment was found for both HD individuals and their relatives. HD relatives reported significantly greater carer burden and accommodation of hoarding behaviors than relatives of collectors. Perceived level of squalor, co-habiting with, and increasing age of the HD individual were significant predictors of carer burden and functional impairment in the relatives.Limitations: The use of self-identified HD individuals may have produced a bias towards participants with relatively good insight. Subjective biases in self-reported symptoms cannot be ruled out, although the use of informant-report data provided some independent validation.Conclusions: HD is associated with substantial functional impairment for both sufferers and their relatives. The level of carer burden experienced by HD relatives was comparable to or greater than that reported in the literature by relatives of individuals with dementia. The findings indicate that relatives of individuals with HD may benefit from increased support and suggest that it may be beneficial to involve family members in the treatment of HD. (C) 2014 Elsevier By. All rights reserved,