Quality of life assessment in daily clinical oncology practice: A feasibility study

Quality of life assessment in daily clinical oncology practice: A feasibility study
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DOI:
10.1016/s0959-8049(98)00018-5
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发表时间:
1998-07-01
影响因子:
8.4
通讯作者:
Aaronson, NK
Aaronson, NK
中科院分区:
医学1区
文献类型:
--
作者:
Detmar, SB;Aaronson, NK

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生活质量(QL)评估越来越多地被纳入临床试验,但它们在临床实践中的使用仍然很少见。本研究的目的是探讨将个人生活质量评估引入到肿瘤门诊的日常工作中的可行性,以及这种评估对医患沟通的潜在影响。研究样本包括来自荷兰癌症研究所/荷兰阿姆斯特丹Antoni van Leeuwenhoek医院门诊的6名医生和18名患者。对于每个患者,观察了三次随访咨询。第一次访问是为了基线测量的目的。在随后的两次访问中,患者被要求完成EORTC QLQ-C30,这是一份标准化的癌症特异性QL问卷。患者的反应被电脑评分,并转换为图形摘要。摘要包括目前的分数以及上次访问时得出的分数。就在医疗咨询之前,医生和患者都收到了一份摘要副本。QL数据的填写、评分和打印可在候诊室时间内完成。摘要的提供并没有延长平均会诊时间。注意到每次会诊讨论的质量问题的平均数量略有增加。然而,最值得注意的趋势是医生在提出具体的QL问题供讨论时承担了越来越多的责任。当QL摘要可用时,医生提出的主题是使用前的三倍(P<0.05)。所有六名医生和大多数患者都认为QL摘要促进了沟通,并表示有兴趣继续使用该程序。在常规的门诊肿瘤学实践中引入个人QL评估是可行的,并似乎刺激医生询问他们患者的健康和幸福的具体方面。然而,考虑到这项初步研究的方法学局限性,对结果的解释应谨慎。(C)1998爱思唯尔科学有限公司。保留所有权利。
Quality of life (QL) assessments are increasingly being included in clinical trials, but their use in clinical practice is still uncommon. The objectives of this study were to investigate the feasibility of introducing individual QL assessments into the daily routine of an out-patient oncology clinic, and the potential impact of such assessments on doctor-patient communication. The study sample included six physicians and 18 of their patients from the out-patient clinic of the Netherlands Cancer Institute/Antoni van Leeuwenhoek Hospital in Amsterdam, The Netherlands. For each patient, three follow-up consultations were observed. The first visit was employed for the purpose of a baseline measurement. At the two subsequent visits, the patients were asked to complete the EORTC QLQ-C30, a standardised cancer-specific QL questionnaire. The patients' responses were computer-scored and transformed into a graphic summary. The summary included current scores as well as those elicited at the previous visit. Both the physicians and the patients received a copy of the summary just prior to the medical consultation. Completing, scoring and printing the QL data could be done during waiting room time. The availability of the summary did not lengthen the average consultation time. A small increase was noted in the average number of QL issues discussed per consultation. However, the most notable trend was the increased responsibility taken by the physicians in raising specific QL issues for discussion. When the QL summary was available, the physicians raised three times as many topics than was the case prior to its use (P < 0.05). All six physicians and the majority of patients believed that the QL summary facilitated communication, and expressed interest in continued use of the procedure. The introduction of individual QL assessments in routine out-patient oncology practice is feasible and appears to stimulate physicians to inquire into specific aspects of the health and well-being of their patients. However, given the methodological limitations of this pilot study, the results should be interpreted with caution. (C) 1998 Elsevier Science Ltd. All rights reserved.