UK Blobank: a project in search of a protocol?
UK Blobank: a project in search of a protocol?
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DOI：
10.1016/s0140-6736(03)13377-6
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发表时间：
2003-05-17
期刊：
影响因子：
168.9
通讯作者：
Barbour, V
中科院分区：
文献类型：
--
作者：
Barbour, V
在开始招募参与者之前，英国生物银行项目就已经激发了科学家们的非凡热情。一些科学家普遍支持该项目，并认为它是一种科学上有效的、具有潜在价值的资源，尽管他们对当前协议的细节仍持保留态度。其他人则认为这是一个考虑不周、出于政治动机的项目，其磋商只是为了给人一种合法性的印象，而其设计并未提供科学依据。人们对该协议的演变方式抱有不满，而围绕竞标参与的团体的过程的保密和法律限制似乎试图扼杀辩论。对于这篇文章，即使是该项目的支持者也不愿意被记录在案。每个人似乎都同意的唯一一点是，关于该项目的辩论还没有发生。
Before it has even begun recruiting participants, the UK Biobank project has raised extraordinary passions among scientists. Some scientists are broadly supportive of the project, and feel that it is a scientifically valid, potentially valuable resource, although they still have reservations over the details of the current protocol. Others see it as, an ill-conceived, politically motivated project, in which consultations have only been done to give an appearance of legitimacy and in which the scientific case has not been made for its design. There has been resentment over how the protocol has evolved, and the secrecy and legal constraints that surrounded the process for groups bidding to be involved has had the appearance of attempting to stifle debate. For this article even supporters of the project have been unwilling to be quoted on the record. The only point that everyone seems to agree on is that sufficient debate about the project has not taken place.