Systematic review on Internet Support Groups (ISGs) and depression (2): What is known about depression ISGs?

Systematic review on Internet Support Groups (ISGs) and depression (2): What is known about depression ISGs?
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DOI:
10.2196/jmir.1303
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发表时间:
2009-09-30
影响因子:
7.4
通讯作者:
Tam A
Tam A
中科院分区:
医学2区
文献类型:
--
作者:
Griffiths KM;Calear AL;Banfield M;Tam A

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互联网支持小组 (ISG) 是抑郁症患者在线交流的一种流行方式。许多研究评估了抑郁症特异性 ISG 的性质和影响。然而,迄今为止,尚未发表对此证据的系统评价。 目的是系统地识别和总结有关抑郁症 ISG 研究范围和结果的现有证据。 使用从相关论文、摘要和同义词库中提取的 150 多个搜索术语对三个数据库(PubMed、PsycINFO、Cochrane)进行了搜索。如果他们雇用了在线同行抑郁症特定支持小组并报告了定量或定性的经验数据,则论文将被纳入。每项研究的目标均根据 20 类分类系统进行编码,其中包括对抑郁症和其他结果的影响,包括寻求帮助;用户特征、活动、满意度、感知优势、感知劣势;使用 ISG 的原因; ISG 职位的性质;抑郁症 ISG 与其他 ISG 类型相比的特征、面对面小组和面对面咨询; ISG结构及纵向变化;以及 ISG 依从性的预测因素。 从最初的 12,692 篇摘要中,有 13 篇论文满足纳入标准。其中,三项使用调查问卷收集数据,九项分析帖子样本,一项既收集调查数据又分析帖子样本。大多数研究的质量不高,并且在抑郁症 ISG 的大多数关键方面收集的数据很少。这些研究最常见的目标是分析帖子的性质(八项研究)并描述网站使用情况(六项研究)和用户特征(五项研究)。最普遍的社会支持类型是情感支持、信息支持和社交陪伴。鉴于抑郁症 ISG 的受欢迎程度以及有关它们的可用证据的缺乏,需要对这些群体、其影响以及其成员和用户的特征进行高质量、系统的研究。消费者、提供者和教育组织、指南制定者、政策制定者以及考虑使用、推荐、提供或资助此类团体的资助机构需要此类信息来为决策提供信息。
Internet support groups (ISGs) are a popular means by which consumers with depression communicate online. A number of studies have evaluated the nature and impact of depression-specific ISGs. However, to date there have been no published systematic reviews of this evidence. The aim was to systematically identify and summarize the available evidence concerning the scope and findings of studies of depression ISGs. Three databases (PubMed, PsycINFO, Cochrane) were searched using over 150 search terms extracted from relevant papers, abstracts, and a thesaurus. Papers were included if they employed an online peer-to-peer depression-specific support group and reported either quantitative or qualitative empirical data. The objective of each study was coded according to a 20-category classification system, which included the effect on depression and other outcomes, including help seeking; user characteristics, activity, satisfaction, perceived benefits, perceived disadvantages; the reason for using the ISG; the nature of ISG posts; characteristics of depression ISGs compared to other ISG types, face-to-face groups, and face-to-face counseling; ISG structure and longitudinal changes; and predictors of ISG adherence. Thirteen papers satisfied the inclusion criteria from an initial pool of 12,692 abstracts. Of these, three collected data using survey questionnaires, nine analyzed samples of posts, and one both collected survey data and analyzed a sample of posts. The quality of most studies was not high, and little data were collected on most key aspects of depression ISGs. The most common objective of the studies was to analyze the nature of the posts (eight studies) and to describe site usage (six studies) and user characteristics (five studies). The most prevalent types of social support were emotional, informational, and social companionship. Given the popularity of depression ISGs and the paucity of available evidence about them, there is a need for high-quality, systematic studies of these groups, their impact, and the characteristics of their members and users. Such information is required to inform decision making by consumers, provider and educational organizations, guideline developers, policy makers, and funding bodies considering using, recommending, providing, or funding such groups.
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