Talking About Familial Breast Cancer Risk: Topics and Strategies to Enhance Mother- Daughter Interactions
Talking About Familial Breast Cancer Risk: Topics and Strategies to Enhance Mother- Daughter Interactions
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DOI：
10.1177/1049732314524638
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发表时间：
2014-04-01
影响因子：
3.2
通讯作者：
Bylund, Carma
中科院分区：
文献类型：
--
作者：
Fisher, Carla L.;Maloney, Erin;Bylund, Carma
遗传的癌症易感性会使家庭不安，造成不正常的互动。家庭需要帮助来引导关于风险的对话。因为母亲和女儿独特地分享乳腺癌的经历和风险，所以从业者特别需要帮助她们进行沟通。研究人员对11名癌症风险较高的母亲（她们的女儿处于青春期）进行了三个焦点小组的研究，这些母亲接受了遗传咨询。我们探讨了三个问题来捕捉母女之间的沟通：突发的挑战性话题（例如，健康促进行为，女儿的风险，母亲的死亡风险），使讨论复杂化的因素（例如，平衡分享什么和何时分享，内疚和责备，对风险和预防的困惑），以及加强母亲（例如，注意女儿的暗示）或从业者（例如，邀请女儿参加约会）发起的对话的策略。调查结果表明，母亲们努力平衡引起女儿的担忧，为她们提供支持，并在不压倒她们的情况下传授知识。我们为母亲和从业者提供指导，以帮助促进这些对话。
A hereditary cancer predisposition can rattle families, creating dysfunctional interactions. Families need assistance navigating conversations about risk. Because mothers and daughters uniquely share breast cancer experiences and risk, there is a particular need for practitioners to assist them with communication. Three focus groups were conducted with 11 mothers with an elevated cancer risk (with adolescent daughters) receiving genetic counseling. We explored three inquiries to capture mother-daughter communication: emergent challenging topics (e.g., health-promotion behavior, daughter's risk, mother's risk of death), factors complicating discussions (e.g., balancing what to share and when, guilt and blaming, confusion about risk and prevention), and strategies enhancing conversations initiated by mothers (e.g., paying attention to daughter's cues) or practitioners (e.g., inviting daughters to appointments). Findings suggested that mothers struggle to balance eliciting daughters' concerns, providing them with support, and imparting knowledge without overwhelming them. We offer mothers and practitioners guidance to help facilitate these conversations.