Feasibility, Acceptability, and Preliminary Efficacy of the Unity Workshop: An Internalized Stigma Reduction Intervention for African American Women Living with HIV

Feasibility, Acceptability, and Preliminary Efficacy of the Unity Workshop: An Internalized Stigma Reduction Intervention for African American Women Living with HIV
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DOI:
10.1089/apc.2012.0106
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发表时间:
2012-10-01
影响因子:
4.9
通讯作者:
Simoni, Jane
Simoni, Jane
中科院分区:
医学2区
文献类型:
--
作者:
Rao, Deepa;Desmond, Michelle;Simoni, Jane

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观察性研究已经调查了非洲裔美国妇女感染艾滋病毒的患病率和内化耻辱的影响,但没有干预研究调查这一人群的耻辱减少策略。基于先前收集的定性数据,我们改编了国际妇女艾滋病污名研究中心工具包,用于非洲裔美国妇女的国内人口,以符合科里根的战略污名改变原则。我们实施了干预,由一位感染艾滋病毒的非裔美国妇女领导,作为两个下午的研讨会。参与者讨论由专门为此目的制作的视频“引发”的问题,相互学习应对机制,并在角色扮演中相互练习。我们对两组妇女(总N = 24)进行了干预试验,用慢性疾病病耻感量表测量了参与研讨会前后内化病耻感的变化。62%的参与者自我报告通过异性性接触感染艾滋病毒,17%通过静脉注射毒品感染,4%在子宫内感染,13%不知道传播途径。干预是可行的,被妇女热情地接受,从研讨会开始到结束(p = 0.05)以及最后一次研讨会后1周(p = 0.07),耻辱感有所下降。研究结果表明,干预措施值得进一步调查。
Observational studies have examined the prevalence and impact of internalized stigma among African American women living with HIV, but there are no intervention studies investigating stigma reduction strategies in this population. Based on qualitative data previously collected, we adapted the International Center for Research on Women's HIV Stigma Toolkit for a domestic population of African American women to be consistent with Corrigan's principles of strategic stigma change. We implemented the intervention, led by an African American woman living with HIV, as a workshop across two afternoons. The participants discussed issues "triggered'' by videos produced specifically for this purpose, learned coping mechanisms from each other, and practiced them in role plays with each other. We pilot tested the intervention with two groups of women (total N = 24), measuring change in internalized stigma with the Stigma Scale for Chronic Illness before and after workshop participation. Sixty-two percent of the participants self-reported acquiring HIV through heterosexual sexual contact, 17% through intravenous drug use, 4% in utero, and 13% did not know the route of transmission. The intervention was feasible, enthusiastically accepted by the women, and led to decreased stigma from the start of the workshop to the end (p = 0.05) and 1 week after (p = 0.07) the last session of workshop. Findings suggest the intervention warrants further investigation.