1 Carer perspectives of trust and authority during COVID-19
1 Carer perspectives of trust and authority during COVID-19
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1 COVID-19 期间护理人员对信任和权威的看法
DOI：
10.1136/bmjopen-2021-qhrn.1
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发表时间：
2021
期刊：
影响因子：
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通讯作者：
Aker N
中科院分区：
文献类型：
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作者：
Aker N
2019冠状病毒病全球大流行对患者及其护理人员获得和感知服务的方式产生了重大影响。对服务的信任发生了变化，与医疗保健专业人员的关系受到了影响，护理人员现在寻求其他更容易获得的支持来源。本文的目的是探讨痴呆症和绝症患者的护理人员为支持帮助热线带来的信任问题、他们必须做出的决定以及疫情对临终关怀的影响等方面的挑战和担忧。从痴呆症英国和居里夫人组织招募了8名热线支持人员，并通过微软团队的视频电话进行了半结构化定性访谈。采访是在参与者同意的情况下录制的，并通过微软流自动化系统进行转录和检查。采用NVIVO 11的专题分析方法对数据进行分析。根据大流行的时间点对访谈数据进行编码；早，晚，或一般。人们发现，从大流行开始到今天，信任、机构丧失和对政府指导方针的困惑等问题一直在表达。这些情况包括在医院和护理院的护理，特别是由于上述人员缺乏关于其亲属福利的沟通，以及护理人员无法选择其亲属的出院途径。人们还对疫情期间针对弱势群体的指导方针迅速和不断变化表示担忧，护理人员从慈善机构的帮助热线而不是权威人士和政府那里寻求信息和安慰。
The COVID-19 global pandemic has had a significant impact in the way services are accessed and perceived by patients and their carers. Trust in services has shifted, and relationships with healthcare professionals have been affected, with carers now seeking alternative and more accessible sources of support. The aim of this paper is to explore the challenges and concerns including issues around trust that carers of people living with dementia and terminal illness have brought to support helplines, the decisions they are having to make, and the impact that the pandemic has had on end of life care. Eight helpline support workers were recruited from the Dementia UK and Marie Curie organisations, and semi-structured qualitative interviews were conducted through video calls on Microsoft Teams. Interviews were recorded with participants’ consent and transcribed and checked via the Microsoft Stream automated system. The data was analysed by means of thematic analysis on NVIVO 11. Interview data was coded according to the point of time in the pandemic; early, later, or general. It was found that issues of trust, perceived loss of agency and confusion regarding government guidelines were expressed from the beginning of the pandemic to the current day. These stemmed from situations including care within hospitals and care homes, particularly due to a lack of communication from the aforementioned about the welfare of their relatives, and choices being removed from carers about their relatives’ discharge pathways. There were also concerns raised about the rapidly and constantly changing guidelines for vulnerable people during the pandemic, with carers seeking information and reassurance from charity helplines rather than authority figures and the government.