Psychosocial Challenges Associated with Caregiving in the Context of Pediatric HIV in Rural Eastern Cape
Psychosocial Challenges Associated with Caregiving in the Context of Pediatric HIV in Rural Eastern Cape
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DOI：
10.3389/fpubh.2017.00127
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发表时间：
2017-06-12
影响因子：
5.2
通讯作者：
Lentoor, Antonio G.
中科院分区：
文献类型：
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作者：
Lentoor, Antonio G.
背景：虽然由于抗逆转录病毒联合治疗，感染人体免疫机能丧失病毒（艾滋病毒）的儿童的存活率有所提高，但由于获得性免疫机能丧失综合症失去亲生父母中的一方或双方，许多儿童仍然容易受到贫穷和家庭破裂的不利影响。本定性研究的目的是发展的心理社会挑战的理解经历照顾儿童围产期获得性艾滋病毒。方法：对44名HIV阳性和阴性儿童的主要照顾者进行访谈。采用NVivo8软件对数据进行解释性现象学分析。研究结果：研究结果表明，由于经济资源不足和单亲家庭，主要是祖父母承担艾滋病毒阳性儿童的主要照顾者的角色，照顾工作受到损害。艾滋病毒仍然是一种被污名化的疾病，削弱了支持网络，以及及时和免费获得医疗保健的机会。这对照顾者的心理健康产生了负面影响，研究中的大多数女性都表现出抑郁症状。结论：研究结果突出了艾滋病毒存在时护理的情境挑战，这对家庭的社会生态产生了负面影响。报告指出，有必要采取干预措施，增强感染艾滋病毒的家庭的复原力和应对能力。
Background: While survival among human immunodeficiency virus (HIV)-infected children has increased due to combination antiretroviral therapy, many children remain vulnerable to the adverse effects of poverty and family disruptions as a result of the loss of one or both biological parents to acquired immunodeficiency syndrome. The aim of this qualitative study was to develop an understanding of the psychosocial challenges experienced by caregivers caring for a child with perinatally acquired HIV.Method: A series of interviews were conducted with 44 HIV-positive and -negative primary caregivers of HIV+ children. Data were analyzed through interpretative phenomenological analysis using NVivo8 software.Findings: The findings suggest that caregiving is compromised by inadequate, financial resources and single-headed households where mainly grandparents assume the role of primary caregivers of HIV+ children. HIV remains a stigmatized illness that weakens support networks, as well as timeous and free accessibility to healthcare. This has a negative impact on the mental health of caregivers, with the majority of women in the study displaying symptoms of depression.Conclusion: The findings highlight the contextual challenges of caregiving in the presence of HIV, which impacts negatively on social ecology of the families. The need for interventions to enhance resilience and coping in families confronted with HIV is indicated.