Parent factors and adolescent sickle cell disease: Associations with patterns of health service use
Parent factors and adolescent sickle cell disease: Associations with patterns of health service use
复制标题
DOI：
10.1093/jpepsy/27.5.475
复制
发表时间：
2002-07-01
影响因子：
3.6
通讯作者：
Smith-Whitley, K
中科院分区：
文献类型：
--
作者：
Logan, DE;Radcliffe, J;Smith-Whitley, K
目的：探讨青少年镰状细胞病(SCD)患者的父母特征(亲子关系、父母疾病知识、父母对疾病负担的认知)与常规和紧急卫生服务利用之间的关系。70名12-18岁的青少年和他们的父母完成了问卷调查，评估了疾病知识、疾病负担、亲子关系和青少年的心理功能。结果：在控制了疾病的严重程度和生活事件后，父母对更多与疾病相关的压力的感知是这两种服务使用的最强预测者。父母对SCD的了解越多，常规服务使用频率也越高。疾病严重程度与紧急服务使用频率密切相关。结论：父母特征和疾病严重程度都与服务使用模式有关。加强父母的功能方面可能有助于家庭在SCD疼痛管理的医疗保健服务方面做出适应性决定。
Objective: To examine relationships among parent characteristics (parent-adolescent relationship, parents' illness knowledge, and parents' perceptions of illness-related burden) and use of routine and urgent healthservices among adolescents with sickle cell disease (SCD).Method. Seventy adolescents, ages 12-18, and their parents completed questionnaires assessing illness knowledge, perceptions of illness burden, parent-adolescent relationships, and adolescents' psychological functioning. Information about pain, routine services (i.e., care at home, clinic visits) and urgent service use (i.e., emergency department visits, hospitalizations) was obtained from parents and medical records.Results: After we controlled for disease severity and life events, parents' perception of more illness-related stress was the strongest predictor of both types of service use. Greater parental knowledge about SCD also related to higher frequency of routine service use. Disease severity was strongly associated with frequency of urgent service use.Conclusions: Both parent characteristics and disease severity were associated with patterns of service use. Enhancing aspects of parental functioning may help families make adaptive decisions regarding health care services for SCD pain management.